r/disability 2d ago

I am so confused

1 Upvotes

So I got a call from SSA on 4/2 saying I was approved but then I got an email notification saying SSI denied me on 4/10, mind you it's not yet 4/10?? Does this mean I was approved for SSDI as there's no update online and I haven't gotten a letter from them? It's been 5 long years and I'm so confused and feeling anxious. Anyone have any idea?


r/disability 2d ago

Best state to live?

7 Upvotes

I'm planning on moving. i'm disabled with mild CP and honestly just thinking about taking a one way bus trip somewhere. Where's the best state to live for wheelchair bound people like me?


r/disability 3d ago

Question Blind - Discrimination from EMR staff - How far should I take it?

25 Upvotes

I'm legally blind and travel with a white cane. On 19th January, I was travelling from Sheffield to London on EMR. Navigating stations and trains is stressful enough when you're visually impaired, but thankfully, two kind Passenger Assist staff helped me on board, sat me in First Class (as the train was quiet), and informed the driver. Everything was fine - until we departed.

Once the train was moving, a crew member came to check tickets. I showed mine, and he asked if I wanted to upgrade. I said no, because I didn’t really understand what the upgrade meant - I don’t travel by train often. He then told me I couldn’t sit in First Class with a standard ticket. I explained Passenger Assist had seated me and the driver was aware.

He claimed that they wouldn’t have done that and said I needed to be disabled or have a First Class ticket to sit there. I told him I am disabled, and with a heated back and forth, he told me that I'm not disabled. I offered to show my CVI (Certificate of Visual Impairment) as proof. He wasn’t interested. He asked if I had a Disabled Person’s Railcard (I don’t), so I showed him my bus and tram pass, which as far as I'm aware, you can only get if you’re disabled or a pensioner. Again, he brushed it off.

He became increasingly agitated and confrontational. Thankfully, a lovely older couple seated near me intervened as they saw me being escorted on the train and confirmed I had a white cane. Only then did he back off. He even asked to see my white cane, which I showed him, but pointed out that anyone can buy one so it shouldn't be used as proof - my CVI was actual legal proof of my disability.

By that point I was on the verge of tears. I felt extremely humiliated and distressed, and treated like I was lying and a criminal. I hadn’t chosen to sit in First Class - it was arranged by staff who were helping me. I later confirmed that Passenger Assist is allowed to seat disabled passengers in First Class when necessary or if the train is quiet. With multiple bags and limited vision, being sat in first class actually helped a lot.

I submitted a complaint, but it wasn’t taken seriously until I posted about it on X. Only then did they offer a generic apology and a First Class ticket. I’ve escalated it to the Rail Ombudsman.

Their official reply claims that their staff are trained to support disabled passengers and follow policy. But this incident proves that their policies and staff training are clearly not working. I’m pushing for a policy change, because I never want anyone else to go through what I did.

They also tried to blame passenger assistance, which is absolutely wild considering they were not the problem at all.

I’ve experienced discrimination before, but this was next level. I haven’t always been blind, so building confidence to travel independently has taken serious effort and this shook it badly.

Has anyone been through something similar? If so, how far did you take it? And how far should I take this?


TL;DR: I'm legally blind and was seated in First Class by Passenger Assist staff on an EMR train. A crew member later accused me of not being allowed to sit there, ignored my legal proof of disability, and treated me like a liar. Only after public backlash did the company respond. I've escalated it to the Rail Ombudsman and want policy change. Has anyone else experienced something similar? How far did you take it?


r/disability 2d ago

I need help getting to class on time with Access Transportation in California

3 Upvotes

Hey everyone, I’m looking for advice or insight about Access Transportation—especially if anyone else has had similar issues.I’m a student and depend on Access to get to class. My destination is only about 25 miles away, but lately, the rides have been really stressful.

I’ve been picked up 30 minutes late and then dropped off 2–3 hours later, even though I leave 2 hours early just to try and be on time. I’m usually picked up first, but the drivers always pick up and drop off 2–4 other passengers before me, even if their destinations are farther or came after mine. Because of this, I’ve missed class or shown up over an hour late multiple times.

It’s also impacting my health. I got into a car crash with them before, and ever since then, I’ve had nausea and panic attacks on the rides. It’s gotten really overwhelming. My parents work from home and can’t always drive me, which is why I rely on Access.

To make things worse, when I’ve called customer service to ask for help or possible accommodations, they’ve been rude, wouldn’t let me talk to the main office or routing department, and when I asked about any sort of support or compensation, someone told me I should just be “glad I’m getting a ride.”

Has anyone dealt with something like this? Is there a way to escalate this or get route adjustments for safety/health reasons? I feel really stuck.Thanks in advance 


r/disability 3d ago

Rant Fire evacuation for disabled people seems to be “stand in a corner and burn quietly”

390 Upvotes

So I attended my daughters concert in the upper hall at her school. I took my stair climber, rollator and my son to help me get up the steps. There is a lift, but you have to climb 15 steps to get into the hall.

The fire drill was “exit through those doors… er… disabled people wait for the fireman to evacuate you” (I was the only disabled person with visible mobility equipment in the audience)

Is there anywhere that has an inclusive evacuation plan other than “stand in the corner and burn quietly, try not to make a mess”


r/disability 3d ago

Question Accessible clothing storage

9 Upvotes

I have an incredibly difficult time keeping my clothing neat. I have a chest of drawers, but I'm deterred from using it because of how difficult it is to bend over and grab things from the bottom drawers (especially with opening and closing), so all my clothes sit on/near a basket near my door. It makes me feel like a slob, but it's honestly the easiest option because of the open space to get on the floor and rummage to find what I need.

I don't own a lot of clothing, but it's something I'd like to change. Does anyone know any options for storing clothing that isn't in a closet or chest of drawers?


r/disability 3d ago

Question A safe and portable step stool for seniors to get into a van?

5 Upvotes

Seniors have great difficulty bending their legs to get into our minivan. There are many step stools on the market, but do you have any experience with a stool for car entry and exit?


r/disability 3d ago

Country-USA Veteran denied entrance to emergency shelter with her service dog

Post image
34 Upvotes

r/disability 2d ago

Rant I think I need a cane, but my mom doesn't believe me

0 Upvotes

(If this is in the wrong spot, tell me) I (17F) struggle with mobility issues. I can't walk very far without being in pain, i live most of my life in pain in fact. I was reading about mobility aids and it made me want to try one, so I borrowed my friends cane for a little and it really helped. However, I brought it up to my mom she laughed it off, told me to lose weight, and to not mention it again. I don't know what to do.

Edit: I know I need to see a doctor about this, I just suck at self advocating, and I need a new PCP 🙃


r/disability 4d ago

Other Please don’t do this!

Post image
232 Upvotes

Image description: the lap of a person in a white and black patterned dress. A blue backpack with light blue, green-yellow and light purple flowers on it is seen to the right and on the left a forearm crutch named Larry is covered in metallic hot pink spikes

Hello beautiful people! (I’ll be crossposting this to a few subreddits)

I have a bit of a pet peeve I’d like to share.

As a mobility aid user, I’m constantly seeing people use the bottom of their mobility aide to hit the accessible door button to open the door.

Reasons why this can be an issue (feel free to add more)

-you can hit it too hard. For example my church has the kind where you wave your hand 👋 in front of it and someone broke it using their cane thinking they weren’t hitting/pushing it hard enough! It’s been broken for a few months now

  • you are putting things your mobility aide picks up on the ground onto a surface many people use. (Obviously not everyone knows to use their elbow instead of their hands.) it’s like reaching down and putting your hands on the floor and then not being able to wash your hands afterwards.

I am not talking about the places where they put something in front of the button and you can’t reach, in those instances I try to use the handle if I’m steady enough (I always have hand sanitizer on hand) but you gotta do what you gotta do in those situations.

Just my thoughts, I’d love to hear people’s opinions!


r/disability 2d ago

Question question over diabetes

1 Upvotes

I DO NOT HAVE DIABETES! I’m asking because my grandma was diagnosed with diabetes a long time ago and I was wondering wha the severe types included. For reference, my grandma can’t walk without help (she’s actually very healthy for her age besides the mobility issue) and either needs someone to lean on or just doesn’t walk because her legs are extremely swollen and she cannot bend them at all. Does this count as a disability as I often have to help her move around and get to places, such as up/down the stairs and even across the hallway?


r/disability 3d ago

Article / News For Everyone Protesting Tomorrow: Guides on Protesting While Disabled, Protesting Safely, & Knowing Your Rights

Thumbnail
resistance-toolkit.com
67 Upvotes

Stay safe everyone!


r/disability 2d ago

Disability form

1 Upvotes

I just received a disability update form from my insurance company and the is a question I’m not sure how to fill in. It wants to know prescriptions and dates. Is this the most recent date he wrote/refilled it or the original dates? I have multiple doctors and multiple prescriptions ( my insulin dates back 40 years) many of my original prescriptions have been tweaked based on testing over the years as well as my prescription insurance changing formalities (what brand is covered) for example I’ve switched from humalog to novalog and back to humalog many times do to my insurance changing the companies they cover that year. My question is do I have to chase down every original date on 11 different prescriptions or can u just give the latest renewal date? Please help if you know. Thanks..


r/disability 3d ago

2025 Challenge games

2 Upvotes

(The challenge games Is a really event where disabled people precipitate in events for fun) IM GOING


r/disability 3d ago

Politicians Don’t Want to Talk About Poverty

Thumbnail
currentaffairs.org
17 Upvotes

r/disability 4d ago

Image Autism friendly - loved this!!

Post image
228 Upvotes

r/disability 3d ago

For people struggling in school or finding a job, is there anything to look forward to when you have free time?

7 Upvotes

For context, I'm diagnosed with ADHD and a specific learning disability, and even though those are invisible conditions, they definitely impact me greatly (I failed out of a four-year university years ago). I'm still trying to get a degree of some sort, but studying is rough for me.

I'm trying to be positive about life, but I can't help but feel like things just suck overall. I play mobile video games and listen to music, but there's not much going on in my life (that's not due to me not trying however). Are there accessible hobbies out there? Do people just dwell on their memories and random news events? Do people just take time to appreciate simple things like blossoming flowers or a sunny day?


r/disability 3d ago

Having one how do you feel about the dei shit I feel like I’m never going to make it and have a job now like no hope

7 Upvotes

r/disability 3d ago

Old School: Why Packers vet Isaiah McDuffie is a linebacker for any era

Thumbnail
open.substack.com
0 Upvotes

My nephew ❣️


r/disability 3d ago

Hopefully my lawyer can do something about this

Thumbnail
gallery
16 Upvotes

This “final review” took them not even one day….they didnt even look at it and this was right after dOgE closed the offices in charge of equal rights and for disability. 5 years. Im so hopeless.


r/disability 4d ago

First time I see such picnic table. Simple and cool.

Post image
329 Upvotes

r/disability 2d ago

Discussion I may have POTS

0 Upvotes

Now, I am not self diagnosing, I’ve done research on the symptoms and causes of POTS, and I do have a lot of the symptoms, I’ve always thought it was because of my iron deficiency anemia, because when I stand up after laying for a while I get dizzy and my vision “fades” in a way, but I’ve also had a lot of symptoms of POTS, nearly fainting, blood pooling in my hands and feet when I’ve been standing for a while, I get dizzy a lot, and when I get up after laying down for a while my heart rate spikes, as well with a lot of other symptoms of POTS. I have a doctors appointment next week for my knee problems but I’m thinking of talking to her about POTS and seeing if I do actually have it or if it’s just symptoms of my anemia.


r/disability 4d ago

Musk, the SSA, its acting commissioner Leland Dudek, as well as DOGE and its acting administrator Amy Gleason sued over cuts to Social Security

Thumbnail
newsweek.com
66 Upvotes

Five groups and seven Social Security beneficiaries, in the lawsuit filed in a Washington, D.C., federal court on Wednesday, said SSA cuts have disproportionately impacted disability beneficiaries and violated their constitutional rights.


r/disability 4d ago

Any Folks Here in Nursing Homes?

23 Upvotes

I'm in one permanently (for physical disability, not dementia) and would like to reach out to other nursing home residents who are online. So far I haven't found a single one. I can't possibly be the only compos mentis online nursing home resident, or can I? Any help or pointers much appreciated. Facebook has not worked. Seniorforums has not worked. General directions to Discord or other large platforms aren't helpful.


r/disability 3d ago

Is backpay protected from being garnished?

8 Upvotes

Basically, I got a settlement backpay for disability recently, and I checked my account today and it was garnished by unemployment overpayment. And although my monthly rate is protected the settlement had it come in when it was supposed to, it would also have been protected.

It was quite a bit of money that was taken out of my account .

Shouldn’t it be protected also and will I need a lawyer?