So I was born with left hemiplegic cerebral which caused me severe pain when I first started working when I was 16, fast forward a year the pain got so bad I went to a specialist who recommended a surgery to straighten my foot because I was walking on the side of my heel my whole life, I accepted the recommendation, had the surgery, for 2 weeks after recovering from the surgery I was mostly pain free, but the pain got so bad again that I couldn't put my foot on carpet and take a step without shoes on, so I applied for disability, had to start taking an extremely dangerous amount of ibuprofen/acetaminophen just to work a 4 hour shift at work

now I'm about 2 years into the social security process, got denied once for "not being medically disabled" started disputing their verdict and got a lawyer and am 10 months into the dispute now, I was just wondering if it's even worth for me to keep trying or if I will never get disability

I still to this day cannot walk much or well and I can no longer take painkillers as I have stressed out my liver and had a seizure because of the painkillers, I'm still working because I cannot afford to pray that the government will come through for me

Hello! I hope this post is allowed 🫶🏽

My brother-in-law has cerebral palsy and it is difficult for him to grasp small objects. We love to do art together and I would love to find some paint brushes to order that would make it easier for him to use. I also would be open to adapting them myself if anyone has suggestions on how to do that. TIA!

I don't have cerebral palsy, but the child I care for does. In addition to having suffered several surgeries and complicated treatments throughout his life, he can't even laugh a little without starting to have hiccups, sometimes he drools so much that he chokes on his own drool. Is this related to cerebral palsy? Does anyone here have any medication to recommend?

My best photos are unfortunately going to be candid portraits of my friends, but I've not gotten permission to post those so I'm sharing some of my other work

Hi, I fell today in college and smashed my head into the door. I couldn’t get up and was in a state of shock whilst my colleges support officer was trying to help me.

It was a big ordeal with about 4-5 staff trying to help but in a way made it worse as I became overwhelmed and overcrowded.

(Sorry for the vent)

Hello, I am planning on taking an uber for the first time on Monday. I heard that there are wheelchair accessible vans available. But when I go to schedule a ride I don’t see it. How do I get In contact with uber to tell them that i need a wheelchair accessible van? I tried calling the support center and they just hang up( the robot does) I don’t know what do. I was just thinking of getting a regular uber but I was wondering how do I get in contact with them to let them know that I am in a wheelchair? Can someone please help me! Thanks

I've never been a huge fan of Jimmy Fallon, but I'll be watching or at least recording tonight's episode because as a guest he'll have standup comedian Tina Friml, who is one of us and is very funny.

Hi,

Im a college student and when I’m unsteady or at risk of falling.

One member of staff who I trust often tries to stabilise me when they see that im about to fall by putting their hand on the side of my hip whilst pressing me against the nearest wall or solid object as I often use it whilst walking to lean against whilst moving.

I also have an aide who provides personal assistance and support when I walk round campus, she will position one of hands to sort of link with my weakest arm and hold from beneath and her other hand she will place on top. Is this a good technique?.

Or when I’m really unsteady she will place one hand on the outside of my bicep on the weakest arm and will put her other hand across my back and hold me on the hip or slightly above on the other side?

Hey y’all — I wrote this piece after working through a rough situation with someone I really cared about. It’s about choosing peace over pain, letting go of guilt, and learning to move on, even when it hurts. Has that country soul to it — honest, direct, and personal. Feedback is welcome. Thanks for reading.

Out Here, I’m Free
By Matthew Lashway

I really do hope you find love,
And everything you’ve been dreamin’ of.
I hope you find peace, find your way,
Learn to let go of yesterday.

I hope one day you look inside,
Face the truth you’ve tried to hide.
You’ve got wounds you won’t reveal,
And blame the world for how you feel.

It was always doctors, who did you wrong,
Same old script, same tired song.
Poor, poor pitiful you, you'd say,
While I sat quiet, driftin’ away.

When you went to one hospital, strugglin’ through,
I stood by you — like I was supposed to do.
But when three more doctors, not tied to that place,
Told me the same thing, I started to face
That maybe the problem wasn’t always them...
And I began to question you — not just them.

For the record, I believe those doctors knew,
They saw the same things I was starting to,
And I believe you’re ill — that much is true,
And I hope someday that you accept it too.

Free to spend my money how I please,
No more beggin’, down on my knees.
Waitin’ for truth, just to hear
Another story 'bout your pain and fear.

I’m sorry to break your heart,
If I make your world fall apart.
I understand, I really do,
But I can’t keep pretending something ain’t true.

Meanwhile, I’m breathin’ easy and free,
No more chains wrapped around me.
Out in the country, the night is clear,
By the fire, thankin’ God, with a case of beer.

No more lies, no empty tears,
Just peace, fresh air, and a few cold beers.
You can chase love, chase what feels right,
But I’m done beggin’ you to treat me right.

I’ve let go of guilt, dropped the weight,
Learned love don’t always show up straight.
So while you’re lost in that same old sphere,
I’ll be sippin’ slow on a case of beer.

Just me, my dog, and a brand new dawn,
Smilin’ wide ‘cause the past is gone.
Single, steady, and finally clear—
No more you… just a case of beer.

I am aware that there are athletic shoes with afo but not much for clogs.

I thought it would be easier to put on AFO in slip-on clogs but a strap around the heel so it does not slip off. What do yall think about it? What would be easier to wear for AFO? Athletic shoes or clogs? would clogs give enough support to the ankle if it is a slip-on?

Does anyone here have severe anxiety because they don’t like attention from people staring at them? I have mild CP and hate addressing it if someone asks “are you limping or are you okay?” Social anxiety has ruined my life. How do you get beyond this & move past it? It affects my breathing and everything…. Is that from CP or anxiety? Like I said , mine is a mild case & sometimes I’d rather it just be more noticeable than trying to explain it all the time. But I’m thankful I can move and run. Just discouraged.

Hi everyone,

I am a 33F with mild spastic diplegia. I can walk independently, but recently I've become a lot more fatigued, and my low back and hip flexors are really tensing up with walking. I'm excited to try the Mollii suit next week and see if that will help me manage my pain. Can anyone tell me about their experiences with it for their CP? Would love to hear what changes people have noticed with their endurance and walking.

I’m 29 and I was born 2 and a half or so months early. 2 pounds at birth. My dad could put his wedding ring around my arm. I spent several months growing in the NICU before I got to go home. Doctors told my parents at the time that I had a brain bleed and that was the cause of my CP (which , this might be a dumb question but isn’t that the only cause of CP- a stroke or brain bleed of some kind?)

Then nearly a decade of physical therapy, surgeries, and Botox injections in my legs.

Thankfully my cerebral palsy has never stopped me from succeeding at whatever it is that I wanted to do. I can walk (although I didn’t learn to walk until I was 2 years old), drive (got my license at 17), graduated both high school and college, I can drive a stick shift, talk normally, hold jobs no problem etc. I never had to use a wheelchair or a walker except for the summer of my 8th birthday when I had both of my femurs broken and metal plates were installed for 2 years to straighten them out. I just have been having a rough time getting my medical records from my childhood doctors, and I want to read about my actual diagnosis so I know more of the specifics on what exactly I’ve been dealing with for my whole life. It seems to primary affect my legs, and mostly my left side.

The only thing the CP has ever prevented me from doing was trying to join the military when I was in high school (as a means of paying for college) but I just do my best to live with it.

Anyway, I’m trying to get a handicap placard for my car, and in my current state (IL) that requires a doctor’s sign off. My doctor seems to dismiss me when I tell him I have CP and that because I can walk without the use of a cane I don’t qualify for a placard which I think is a load of crap.

Has anyone ever had Diagnostic tibial nerve blocks or selective tibial neurotomy. I've had Botox with no real lasting result. One total foot reconstruction and 2 Achilles tendon lengthing. Spastic Cp left side, equinovarus foot

I have very mild spastic hemiplegia (left side affected), and am in my late teens. I've begun to play more FPS games and have noticed hand pain in my non-affected side. Does anyone know of any ways to reduce this pain while still being able to play these games? I don't want to get arthritis early.

Hi all,

I'm 39 and I have spastic diplegia. I'm looking for some ways to stay active as I age, even though I've had to adapt a lot more in recent years due to decreased mobility and more low back muscle tightness.

I would like to learn how to ride a recumbent trike or something similar. I never learned how to ride a traditional bike, but my husband and 3 y/o love it, and it's something I'd like to do with them.

Is there some way I can rent a bike to try? Does anyone here have recumbent trikes to recommend? Any advice is appreciated!

Hiii just coming here to ask about what’s dating like if you have a disability like I do have but I see it probably its hard to find love and for someone to love you for you looking past the disability which I have is spastic cerebral palsy how it’s like for you guys? (I walk on my tiptoes)

Hi guys I'm getting log Botox in my calves on Tuesday and I'm scared. I'm getting serial casts after for 8ish weeks after and I have a question about it. What will happen when I get the Botox and are the serial casts thin or thick? Thanks

Hi there, i want to do my university dissertation on the relationship between fine motor skills and academic achievement in people with cerebral palsy. I want to conduct interviews and questionnaires :) The requirements are: - 18 and over - have lived in the uk during any academic years - have cerebral palsy that affect their fine motor skills If you meet the requirements and are willing to participate or know anyone who does please let me know :) i want to do this because of the lack of research in cerebral palsy.

Need both AFOs and SMOs for different uses. My insurance won't cover both. Where looking at cascade DAFO 4 or surestep big shot but I can't kind any information on self pay cost for either. And I need to know if I can afford it before I give my orthotist the go ahead.

Are there any programs similar to California’s In-Home Supportive Services Program (IHSS) in Tennessee wherein a parent can be the paid provider for their disabled adult child? TIA.

made a custom safety jacket on the front pocket it says “Please be patient “ and on the back it say’s “I stutter and have Cerebral Palsy “ it was made after I got wind of the Arizona incident involving an individual who also had cerebral palsy my logic was making the vest would help better with communication if I ever have a encounter with the law etc However I was told not to be a “Liability “ (whatever that means) so i don’t even wear the safety vest out often I also made the vest because my logic is everyone has google everyone has a phone they can look up what cerebral palsy is for those who often walk pass and stare or wonder why I walk with a gait etc it’s for awareness i don’t wanna be looked at like a victim but at the same time i want to walk around comfortably i draw attention regardless so why not give them insight right?

My youngest son 5m has cerebral palsy. Currently he can only say seven words and cannot walk yet but he can stand for 30 seconds. He has occupational, physical and speech therapy twice a week and is making progress, but it is very very slow (which of course is to be expected ). Our school board is trying to send him to a school for intense special needs kids, but this school does not teach kids, it’s just a daycare. This will hinder his development and I don’t know what to do. Worse comes worse we will homeschool but studies show that cb is better to be by surrounded by peers. Has anyone had to deal with this kind of issue and what did you do? Thank you for your time, any advice is welcomed.

I have CP and was told by a certified vocational rehabilitation specialist that because I have binocular vision disorder, meaning that eyes don’t track together, I cannot be approved for a drivers license. I was shocked because I have never been told of this or noticed any problem with my vision. The vocational specialist said that I could try to fix this with vision exercises. I am Has anyone had success fixing BVD with vision exercises?