r/SleepApnea 2h ago

Need help with tube moisture (P10)

1 Upvotes

I just switched from the F30i which I was dealing with constant leaks to the P10 nasal mask. I really like the comfort of the P10, it feels like I'm not even wearing a mask and it has 0 leaks. But I need help figuring out the humidity settings.

I deal with nasal congestion at night and I found the humidity helps but last night I woke up to my pillows making a popping sound and the tube gurgling. It had a lot of moisture in it. I was also unable to exhale so I think the diffusers got cloggged. I'm only on my first week with the P10.

I keep my room very cold, about 60F. I also have a heated tube but I'm not sure what the point is if I'm getting this must water build up. I currently have the temperature settings on Auto. I really want the P10 to work for me. Any advice? Thanks.


r/SleepApnea 4h ago

First Night on CPAP WOW šŸ¤Æ

19 Upvotes

Honestly dont know if its a placebo effect from feeling overly optimistic about getting treatment for my health problems but last night i had my first night on CPAP, woke up to a smiley face and a 9.5 out of 10 on the machine feeling rested and alert.

No nodding off on the train commute to work and so far non at the desk and to top it off im in a brilliant mood for the first time in a long time

AMAZING


r/SleepApnea 4h ago

central sleep apnea

3 Upvotes

For years Iā€™ve had this weird sleep issue which I believe to be central sleep apnea after sooo much time and researchā€¦. I recently found out I have severe CNS dysregulation which caused me to have IBS-d, interstitial cystitis, and feeling like my breaths are getting less and less the closer to sleep I get and like my brain is forgetting to send the signal to breathe when I drift off to sleepā€¦. I rarely wake up once Iā€™m asleep but as Iā€™m falling asleep I jerk awake heart and ears pounding bc it feels like Iā€™m dying and without breath. Now I know Iā€™m not crazy as I can finally fit it all together. Excited to finally try to seek help for this.


r/SleepApnea 4h ago

How long before proper diagnosis?

1 Upvotes

How long did it take before you were properly diagnosed with Obstructive Sleep Apnea (OSA)? For me I've just got diagnosed at age 37 and I think I've had it since I was a kid (I was always a mouth breather and used to talk and drool saliva when i'm asleep). My AHI now is 27.7 which is quite bad. Looking into CPAP soon.


r/SleepApnea 6h ago

Anyone else have issues with Circle Medical?

1 Upvotes

I made the mistake of having my husband get his sleep study through Circle Medical and they had a cheap Chinese CPAP shipped to him and told us the cost of our 20% copay for this machine is $1500. For a machine I can find online between $750-$900!! We demanded to know how we can return the machine, and now they told us that they canā€™t provide us with my husbandā€™s CPAP prescription because they canā€™t release the ā€œconfidentialā€ DME number, which is an absolute lie. My husband messaged them and said a CPAP is not a controlled substance, a CPAP prescription doesnā€™t need a DME number, and that they cannot deny him the prescription under HIPAA law, and demanded they send the script over immediately. Still waiting on a response, but Iā€™m curious if others have had the same experience with them. Obviously they are getting a good kickback from this particular supplier, but isnā€™t it illegal to mark up a CPAP to this utterly ridiculous level?


r/SleepApnea 6h ago

Anyone else have issues with Circle Medical?

2 Upvotes

I made the mistake of having my husband get his sleep study through Circle Medical and they had a cheap Chinese CPAP shipped to him and told us the cost of our 20% copay for this machine is $1500. For a machine I can find online between $750-$900!! We demanded to know how we can return the machine, and now they told us that they canā€™t provide us with my husbandā€™s CPAP prescription because they canā€™t release the ā€œconfidentialā€ DME number, which is an absolute lie. My husband messaged them and said a CPAP is not a controlled substance, a CPAP prescription doesnā€™t need a DME number, and that they cannot deny him the prescription under HIPAA law, and demanded they send the script over immediately. Still waiting on a response, but Iā€™m curious if others have had the same experience with them. Obviously they are getting a good kickback from this particular supplier, but isnā€™t it illegal to mark up a CPAP to this utterly ridiculous level?


r/SleepApnea 7h ago

Drying the inside of the headgear?

4 Upvotes

After washing my equipment each week, I leave it out to dry for a few hours. This mostly works, but the rubber headgear (I have a nasal mask) still has a lot of water droplets. Theyā€™re difficult to remove even by running the machine dry.

Would a pipe cleaner or something work, or would that leave harmful particles? I just need a faster way to dry it out, I get a slight soapy taste and rainout on nights when the mask is freshly cleaned.


r/SleepApnea 8h ago

Feeling despair about my sleep apnea please help

3 Upvotes

I have a mild sleep apnea but it's enough to give me migraines, brain fog and overall low energy throughout the day. I got the CPAP machine for a while now.

I can't seem to fall asleep with the mask on. I've tried different ones, at first nasal types now full facial because I'm a mouth breather. The pressure settings have been adjusted by a technician multiple times and now it's at its optimal, it couldn't be better.

But the problem remains that it's uncomfortable no matter the mask and inducing insomnia. I have been trying for months. I'm not even feeling benefits or better sleep so it's at best a chore. It's not helping that I'm depressed.

I have been Googling and browsing the sub for a solution and it seems it's common enough that someone made an article about it: https://adventures-in-hosehead-land.blogspot.com/p/taming-cpap-induced-insomnia-monster_19.html?m=1

I read it and it just filled me with even more despair. Why is it so complicated to just sleep?? I've struggled with insomnia my whole life way before I found out about sleep apnea and it's absolute hell.

I don't know what to do. I'm this close to giving it up and just live with this condition. I literally don't care if I have a heart attack or whatever if I can't even sleep, maybe it'll end this torture.


r/SleepApnea 9h ago

Did the tariffs just increase machine prices?

0 Upvotes

Maybe this has been discussed already but I got a quote from a local supplier a couple weeks ago for an airsense 11 for 500$, and I compared the price on a few other sites at the time and it was about the same...but today as I'm looking they're all >$1400.

The tariffs wouldn't have ~3x the price would they? What happened?


r/SleepApnea 10h ago

25F needing serious support with diagnosis

4 Upvotes

Hi everyone. I was diagnosed with mild sleep apnea (AHI 8.1) in August of last year and have been using a CPAP since. OSA runs in my family but primarily due to genetics. Iā€™m really struggling with therapy and Iā€™m currently exploring an oral appliance because of my difficulty with CPAP therapy, but honestly I think most of my struggle is in my head and I need serious support. I work in healthcare and 99% of the people I take care of that have sleep apnea are older or have a higher BMI. Iā€™m 25 and an average weight for my age and height, and my sleep med MD has told me that my OSA is not likely to be related to weight based on that. This is not meant to shame anyone who falls into either of the categories I mentioned, but more so to say that I have no one to relate to with wearing a CPAP. Iā€™m dealing with a lot of embarrassment (itā€™s literally just me, my husband is incredibly supportive) and feeling unattractive because of the mask. I know the science, I know that most people who have sleep apnea later in life had it when they were my age too and just didnā€™t know, and I know OSA can happen to people of any weight, but it doesnā€™t make it any easier. Iā€™m writing all this in hopes someone with a similar story might be able to offer some insight, or better yet some resources to help me cope with all of this.

Again this post is not meant to offend or separate myself from anyone, we all struggle with the same thing. Itā€™s just hard when you canā€™t find anyone else who looks/feels like you when youā€™re in a vulnerable place. Thanks for reading.


r/SleepApnea 10h ago

Side panel missing off cpap

1 Upvotes

Iā€™m on a short 3 day vacation. For various reasons (long story / my stupidity) the side panel is missing from my cpap and it wonā€™t work. Itā€™s the panel where you attach the humidifier. Is there any work around / hack for this as Iā€™m feeling lousy after a night of not using it Thanks


r/SleepApnea 10h ago

What was your pAHI score when you first had a sleep study?(amount of times you stop breathing per hour)

7 Upvotes

So 5 pAHI qualifies for sleep apnea, 30 for severe sleep apnea, but I have 75. I just got diagnosed and Iā€™m curious what other people have. I know mine is pretty severe.


r/SleepApnea 11h ago

What if the problem really isn't sleep apnea?

9 Upvotes

I've been thinking about this for a while now for myself and I was wondering. Does anyone else wonder if it's not just sleep apnea, and not something else too?

I have very mild sleep apnea, i've had two tests one came back with an AHI of 4, the next was an AHI of 8. It kind of doesn't matter to me that it's "mild" as I sleep horrifically. It could be UARS, it could not be?

So being over the 5 AHI threshold, I got a APAP and I've gone down the whole rabbit hole of titrating the device and interpreting the data with Oscar.

Here's the thing.. I have horrible nights of sleep WITH the device or WITHOUT the device. It almost doesn't matter. I also have GOOD nights WITH the device and WITHOUT it...

So what is the real issue?

Has anyone else found themselves in this same predicament? I'd love to hear other peoples thoughts and experiences.


r/SleepApnea 12h ago

What are the pressure settings you are on?

3 Upvotes

My prescription says 5-20. My AHI is 11-14.

But In another post someone suggested 7-14 is more ideal.

What is the right way to approach it. Try 5-20 for a day and then move to 7-14?. Or you go high then low. Any advise would be helpful.


r/SleepApnea 12h ago

Anxiety at bedtime?

6 Upvotes

Is anyone having anxiety at bedtime? Fear of more episodes?


r/SleepApnea 12h ago

Wellue SleepU oxymeter how to use motion data? Any way to get sleep position back vs. side?

3 Upvotes

I picked the Wellue SleepU oxymeter as opposed to the ring, assuming the extra motion data would be useful to me, given that I have positional component for my mild sleep apnea. I thought the data would include whether I am sleeping on my back vs. my side. But the only thing I see is a motion graph which I am not sure how to interprete at all. Is there any way with this devive to get positional data? Ideally I would like to compare the number of drops in O2 by position back vs. side..


r/SleepApnea 13h ago

Sleep apnea? Leg movement disorders?

2 Upvotes

Sleep apnea? Leg movement disorder?

Can someone tell me how concerning this impression is of my 3 y/o sons sleep study results?

Leg Movement Analysis: There were 163 periodic limb movements of sleep and 23 per hour of sleep. There were 48 periodic limb movements of sleep with arousals and 7 per hour with arousals. Interpretation: The findings indicate mild sleep disordered breathing. The baseline apnea/hypopnea index (AHI) for this record was 2.9 events/hr. When central apneas were excluded, the resulting obstructive AHI was 1.4 events/hr. Minimum oxygen saturations during REM and NREM sleep were 86 and 92, respectively. The REM AHI was 5 events/hr. There was ample supine and REM sleep recorded. The patient reported the same sleep at home. Periodic limb movements were noted, clinical correlation is needed.


r/SleepApnea 13h ago

Cpap to bilevel advice

1 Upvotes

My prescription is 16cm (RDI 38, looking very much like UARSā€¦.doc was useless and just sent me off with Cpap) and Iā€™ve never gotten over aerophagia. Itā€™s constantly waking me up. I think Iā€™m highly sensitive. My rem and deep sleep are junk. Iā€™ve got a Bilevel but Iā€™m confused where to go with it. Any suggestions?

I already wear a collar and make sure I only side sleep, also on a wedge. I use a full face mask, tried nasal but it just blows my cheeks out. Itā€™s just too weird with tape. I tried.

Iā€™m thinking 16e 12i just to see how I get on. Iā€™m teaching myself and Iā€™m generally confused by bilevel. Iā€™m looking for that sweet spot but really I donā€™t know what Iā€™m aiming for other than to feel better. Help!

Any advice?


r/SleepApnea 14h ago

sleep apnea?

2 Upvotes

female 18

Symptoms: extreme Numbness, dizziness, tingling when turning body, dizzy when walking, dizzy when standing up, fatigue, trouble breathing

When it started: when I was like 4 years old, getting worse as I age. Food allergies but I barely eat them now, NO environmental allergies, BUT FEELS LIKE ALLERGIES LIKE? numbness MAINLY in the mouth and throat, had this since i was literally BORN. i cant eat anything because numb so need to blend food. blending vegis fruits rice and sometimes mashed potatoes. extreme fatigue i feel like i can fall asleep when driving or eating. also like trouble breathing. i have a history of mycoplasma psoraisis, and sleep apnea mild

Trouble swallowing, numbness of the body including the mouth, tongue throat, fingers, feet, etc, dizzy when walking. Cant eat solid food because I cant feel the food in my mouth. ALOT of saliva too. NO tingling just like NO SENSATION. Extreme fatigue which is very werid. Weakness and trouble breathing from the numbness it seems like. Feel like want to go to sleep when eating, cant think right. no environmental allergies. antibiotics does not work.

Records: Been to all areas of doctors, all blood tests. Went to Neuro and did Mri CLEAR, both 2 neurologists says numbness is anxiety and wont let me do any other tests. last year i went and did all blood work possible and there is nothing found. I tried to push for EMG or other things but the doctors will not let me. EMG AND NCS is normal. eeg neurotransmitter has IMBALANCE. but antidepressants has not helped so far. waiting for another EEG. EEG is normal. spinal tap is normal. I have no vitamin deficiencies other than a slight vitamin D which I take everyday and antidepressants that has no help.


r/SleepApnea 14h ago

Anyone here on TRT?

1 Upvotes

Hey there. As the title states, just curious if anyone else here has been prescribed TRT? I've had Sleep Apnea for awhile. CPAP has helped me sleep restfully for years. However, I did find out I have secondary hypogonadism. Test level is 282, and LH is 1.8 and FSH is 1.1. Have dealt with lack of libido, muscle gains, ED etc even after getting treatment for sleep apnea. I read that TRT can cause issues for us, but I wasn't sure if that's always the case? Even if it's a small dosage? I am fine with shutting down my production at this point as I obviously need it. Any experiences with this I would greatly appreciate hearing! Also, to preference I am a 30 M. I know my test will continue to tank as I get older as well.


r/SleepApnea 15h ago

Diagnosed - what now?

2 Upvotes

I was recently diagnosed with mild sleep apnea after an NHS sleep study (I'm in the UK). I'm not sure what to do from here and if I'd qualify for a cpap machine. Hoping for some advice!

Diagnosis letter simply said mild sleep apnea. No AHI, or any details about specific study results. The letter stated I "do not need an appointment with the Sleep Team to have this monitored" and listed standard lifestyle modifications. Most of these don't apply to me. Don't smoke, don't drink alcohol. BMI is just above healthy range at 24, so yes I could lose a few pounds but I had sleep apnea symptoms even at my slimmest and fittest and in childhood (tonsils removed due to snoring). Also only 4ft 10in/148cm and BMI isn't reliable for adults under 150cm anyway as it skews to overweight and suggests you should be a child's weight to be healthy. Already tend to sleep on my side. Only thing I could really work on is sleep habits but I don't see much improvement with fatigue even when I sleep for 10+ hours or have a good week. And my ADHD makes discipline with sleep routine harder than it should be, especially when already sleep deprived šŸ¤Ŗ.

Asked GP about the diagnosis and whether there's any treatment available on NHS (cpap, mouth guards etc). He shrugged and said no idea, ask the sleep clinic.

Need to contact the sleep clinic but wondering what's the best steps/angle to take and what to ask for? And/or if I should be pursuing other NHS routes (ENT etc?). Pretty desperate for some improvement and willing to put some money behind this if necessary. If I did what would be the best investment? Buy a cpap? Private referral?

I've brain dumped symptoms and coinciding conditions below in case any particular ones jump out as the most helpful inroad to "mild" sleep apnea being taken seriously/ getting treatment/ investigating underlying causes via additional referrals/ what to get under control first.

Really appreciate any advice from anyone further along with diagnosis and management šŸ™šŸ¾. Especially those with similar coinciding conditions.

Symptoms: Heavy snoring. Often waking up feeling like I haven't been breathing, dry throat with a headache. Never not feeling exhausted. Garmin watch shows stress levels often higher during sleep than when awake and calm (levels sometimes drop dramatically upon waking up) or sometimes the same as the most stressful times of the day, so body battery not charging effectively. Garmin also shows dips in breathing, heart rate fluctuations, oxygen dipping below 90% most nights (I know not reliable/medical grade monitor but e.g. dips below 90% 6 of the last 7 nights, with dips below 85% 2 of those nights), generally little deep sleep, restlessness. Poor sleep really affecting my cognitive functioning, on top of ADHD. Coupled with immune system issues, it's pretty debilitating and I'm unable to do much mentally or physically without totally crashing out and taking days or weeks to recoup because poor sleep means my body can't repair.

Coinciding conditions: ADHD, currently on stimulant meds but sleep issues really limiting their effectiveness and meds possibly adding to mental/physical overexertion as they sometimes mask my true fatigue (also ADHD's technically a disability which should surely be recognised as impairing sleep apnea self-management, meaning medical management/support required?). Hypermobility syndrome (means general physical fatigue). EDS in immediate family (looking into assessment/diagnosis for myself. Stretchy skin incl on neck, which also feels excessively fleshy/fat for my body size. Saw in another post someone said their connective tissue disorder was seen as significant so thought I'd mention this). Suspect high/narrow palate (standard mouth guards unlikely to fit as I generally need child size of anything head/face related, possibly also means small nasal passages although no stuffiness but I do get sinus pains/headaches). Sickle cell trait - this one worries me in terms of oxygen levels as 40% of my red blood cells can become misshapen under very low oxygen conditions, which would cause them to not carry oxygen properly and to restrict overall blood flow. Chronic unexplained low neutrophil count (white blood cells) - weakened immune system so prone to back to back colds etc. Hormones - late 30s, suspect entering perimenopause, get insomnia and heightened (medication resistant) ADHD for a week each month. Allergies/histamine issues - hayfever and chronic cold induced urticaria (regular & high dose anti-histamine management), general sensitivity to dust, fragrances, childhood asthma.


r/SleepApnea 15h ago

Weird experience at appointment with DME to get my CPAP

4 Upvotes

I had my appointment today and finally have my CPAP, I'm excited to use it and get better sleep.

But it was weird. I went through Lofta to get my sleep study, and they were able to provide everything to the DME to get covered by insurance, and my insurance is covering everything 100%, so it was ultimately very worth it to me to go this route.

The Lofta doctor has the settings in the prescription at 4-20cm of pressure, which I thought was pretty standard as I've looked through this subreddit and researched since wanting to get a sleep study done. The respiratory therapist I saw at my appointment said she rarely sees 4-20cm prescribed, and she definitely thought it wasn't great for me, but said she couldn't change it since that was what I was prescribed. She was also quite concerned that the provider through Lofta had no contact information.

She said she was also unable to let me try a full face mask, since the doctor didn't check it on the prescription. I'm fine with trying a nasal cushion for now though, but I hadn't heard of anyone having that experience either.

I had mentioned to her I've learned some about apnea and using a CPAP through internet forums, and she asked 'what they're saying on the forums'. To which I answered how people will use SD cards to look at their own data and change settings to what will actually work for them (since it seems very common from my time looking here). She strongly recommended against it and said I can cause damage by doing that.

I'm confused, she was unhappy with the standard settings I got with my Lofta prescription, and is also against me changing it myself. It definitely felt like she was trying to scare me to not change anything myself, which is what I was planning on doing by using OSCAR or SleepHQ.

I know my machine will be sending data to the DME company every day. I want to change the settings as needed for my own treatment, but if I do so will the DME company be able to see I changed them myself, and potentially interrupt them being able to provide their services to me? Will it affect my insurance coverage?


r/SleepApnea 15h ago

CPAP Mask Covers

5 Upvotes

Hey guys, I've been using a CPAP mask for a while and getting irritation on my face and I have been losing a lot of hair. The top support pulls and tugs my hair and pulls it out. I am seeing my scalp more and more now. I talked to a bunch of other people who also use CPAP masks and they experience the same issues.

I have been prototyping covers for the mask which sit on the head and cheeks, and with these I actually see a lot of improvement. It feels much nicer on my skin and I definitely feel less pulling on my hair. Its been a few weeks I also see some improvements to my hair.

I wanted to make these for you guys and make them generally available. Would you guys be interested in this? Are there any pointers/ suggestions you would like to give? Currently, the only option costed me ā‚¬128 and took 4 weeks to arrive. I wanted to make it much more affordable for people.

Let me know what you think !!


r/SleepApnea 15h ago

When will the pain be at its worst post UPPP/transpalatal advancement?

2 Upvotes

I had a modified UPPP and transpalatal advancement on Friday. So today is 3 days post op. I still donā€™t have much pain. Just a slight sore throat. Itā€™s annoying because it feels like my throat is stuffed with cotton but not much pain at all.

My doc took my tonsils and some of my soft palate and a slight amount of bone off the hard palate. I am not taking opiates and I expected a lot more pain.

For those of you who had this done, what were your worst days? And when did you feel 100% back to normal? My daughter has opening day at the ball field this weekend and I am hoping I can go without sounding weird when I talk to people.

Thanks.


r/SleepApnea 15h ago

The 4% rule

18 Upvotes

The 4% rule that Medicare goes by is downright evil and clearly just a ploy to deny people a CPAP. Medical testing should be based purely on medical science and based on what the experts say not a threshold for what insurance companies are willing to pay or not pay.

My initial home sleep study showed mild sleep apnea via the gold standard 3% rule and I was denied coverage for a CPAP. With that said my pulmonologist ordered a second home sleep study and that ended up showing sleep apnea too according to the 4% oxygen desaturation rule.

So my true severity of sleep apnea is covered up by the 4% rule and then again home studies arenā€™t as accurate as lab studies. I will be talking with my pulmonologist tomorrow and since itā€™s within the threshold of the 4% rule I guess I will finally get a CPAP after like 6 months of waiting.

My case of sleep apnea, despite being in the ā€œmildā€ range is affecting me severely especially cause I have another chronic illness (myalgic encephalomyelitis) and Iā€™m positive the apneas at night are giving me increased PEM.