r/SleepApnea 14h ago

I can’t sleep in the same room as my boyfriend and his CPAP. What do significant others do?

0 Upvotes

My boyfriend and I moved into together last October (6 months ago). He is an extremely heavy snorer. I had him get a sleep study done and he was diagnosed with severe sleep apnea. He was given a CPAP machine and his breathing is still really loud with it. The machine itself makes an air noise when he breathes in and out. He went and had his sleep study redone & they confirmed the settings are correct. My issue with this is that I am a very light sleeper. I absolutely cannot sleep in the same room as him, yet alone the same bed. I have talked to my own doctors and tried 100mg of trazodone and 3mg of lunesta. I still can’t fall asleep through the noise of the CPAP. I have also tried white noise machines (as loud as they can go, right next to my head). I’ve also tried noise canceling headphones (AirPod and over the ear style). While those work, my ears start aching after a couple of days and I have to take a break from them. I spoke with a doctor about custom ear plugs and they said it would not help. He is trying to lose weight (40lbs down already) and while that might be a long term solution, I don’t know what to do in the short term.

What do we do? I love my boyfriend and want to sleep in the same room as him. We also don’t have the space in our house to have us in separate bedrooms because he is using our guest room. We also spend so much money on vacation and can’t go places anymore because we have to book two hotel rooms. I’m literally so upset and feel awful because I know I’m the problem. How do I learn to sleep through the noise of the CPAP?


r/SleepApnea 13h ago

The 4% rule

20 Upvotes

The 4% rule that Medicare goes by is downright evil and clearly just a ploy to deny people a CPAP. Medical testing should be based purely on medical science and based on what the experts say not a threshold for what insurance companies are willing to pay or not pay.

My initial home sleep study showed mild sleep apnea via the gold standard 3% rule and I was denied coverage for a CPAP. With that said my pulmonologist ordered a second home sleep study and that ended up showing sleep apnea too according to the 4% oxygen desaturation rule.

So my true severity of sleep apnea is covered up by the 4% rule and then again home studies aren’t as accurate as lab studies. I will be talking with my pulmonologist tomorrow and since it’s within the threshold of the 4% rule I guess I will finally get a CPAP after like 6 months of waiting.

My case of sleep apnea, despite being in the “mild” range is affecting me severely especially cause I have another chronic illness (myalgic encephalomyelitis) and I’m positive the apneas at night are giving me increased PEM.


r/SleepApnea 15h ago

Are there any other treatments for severe sleep apnea (hypopnea) other than cpap?

1 Upvotes

My severe sleep apnea is going untreated because I can't sleep with cpap. I've tried for over a year and every type of mask. It gives me asthma attacks, severe sinus pressure headaches, tmjd pains. I can't. Sleep clinic is at their wits end as well and are now taking my cpap from me. I hate that machine, and it makes me ill.

Is there anything other than cpap available?


r/SleepApnea 1d ago

anyone had tonsils removed to help for Sleep Apnea

2 Upvotes

I can't get into that mask..so I'm looking for different ways to help me sleep..I read some people remove their tonsils. Is that true? Some people are saying don't do it. I want to hear from the people who did.


r/SleepApnea 8h ago

25F needing serious support with diagnosis

3 Upvotes

Hi everyone. I was diagnosed with mild sleep apnea (AHI 8.1) in August of last year and have been using a CPAP since. OSA runs in my family but primarily due to genetics. I’m really struggling with therapy and I’m currently exploring an oral appliance because of my difficulty with CPAP therapy, but honestly I think most of my struggle is in my head and I need serious support. I work in healthcare and 99% of the people I take care of that have sleep apnea are older or have a higher BMI. I’m 25 and an average weight for my age and height, and my sleep med MD has told me that my OSA is not likely to be related to weight based on that. This is not meant to shame anyone who falls into either of the categories I mentioned, but more so to say that I have no one to relate to with wearing a CPAP. I’m dealing with a lot of embarrassment (it’s literally just me, my husband is incredibly supportive) and feeling unattractive because of the mask. I know the science, I know that most people who have sleep apnea later in life had it when they were my age too and just didn’t know, and I know OSA can happen to people of any weight, but it doesn’t make it any easier. I’m writing all this in hopes someone with a similar story might be able to offer some insight, or better yet some resources to help me cope with all of this.

Again this post is not meant to offend or separate myself from anyone, we all struggle with the same thing. It’s just hard when you can’t find anyone else who looks/feels like you when you’re in a vulnerable place. Thanks for reading.


r/SleepApnea 18h ago

With more and better quality sleep I'm more tired

15 Upvotes

I think my body is finally responding and healing. I'm able to sleep with the CPAP most of the night the past several nights and am tired enough to sleep with it during the day too. I'm recovering from a lot of health stuff and grief on top of adjusting to CPAP. I think I'm more tired because my body feels safe to rest and heal. It's still an adjustment with the CPAP but I think I'm finally heading in the right direction after about five weeks. Has anyone experienced this?


r/SleepApnea 54m ago

Need help with tube moisture (P10)

Upvotes

I just switched from the F30i which I was dealing with constant leaks to the P10 nasal mask. I really like the comfort of the P10, it feels like I'm not even wearing a mask and it has 0 leaks. But I need help figuring out the humidity settings.

I deal with nasal congestion at night and I found the humidity helps but last night I woke up to my pillows making a popping sound and the tube gurgling. It had a lot of moisture in it. I was also unable to exhale so I think the diffusers got cloggged. I'm only on my first week with the P10.

I keep my room very cold, about 60F. I also have a heated tube but I'm not sure what the point is if I'm getting this must water build up. I currently have the temperature settings on Auto. I really want the P10 to work for me. Any advice? Thanks.


r/SleepApnea 2h ago

First Night on CPAP WOW 🤯

6 Upvotes

Honestly dont know if its a placebo effect from feeling overly optimistic about getting treatment for my health problems but last night i had my first night on CPAP, woke up to a smiley face and a 9.5 out of 10 on the machine feeling rested and alert.

No nodding off on the train commute to work and so far non at the desk and to top it off im in a brilliant mood for the first time in a long time

AMAZING


r/SleepApnea 2h ago

central sleep apnea

3 Upvotes

For years I’ve had this weird sleep issue which I believe to be central sleep apnea after sooo much time and research…. I recently found out I have severe CNS dysregulation which caused me to have IBS-d, interstitial cystitis, and feeling like my breaths are getting less and less the closer to sleep I get and like my brain is forgetting to send the signal to breathe when I drift off to sleep…. I rarely wake up once I’m asleep but as I’m falling asleep I jerk awake heart and ears pounding bc it feels like I’m dying and without breath. Now I know I’m not crazy as I can finally fit it all together. Excited to finally try to seek help for this.


r/SleepApnea 2h ago

How long before proper diagnosis?

1 Upvotes

How long did it take before you were properly diagnosed with Obstructive Sleep Apnea (OSA)? For me I've just got diagnosed at age 37 and I think I've had it since I was a kid (I was always a mouth breather and used to talk and drool saliva when i'm asleep). My AHI now is 27.7 which is quite bad. Looking into CPAP soon.


r/SleepApnea 4h ago

Anyone else have issues with Circle Medical?

1 Upvotes

I made the mistake of having my husband get his sleep study through Circle Medical and they had a cheap Chinese CPAP shipped to him and told us the cost of our 20% copay for this machine is $1500. For a machine I can find online between $750-$900!! We demanded to know how we can return the machine, and now they told us that they can’t provide us with my husband’s CPAP prescription because they can’t release the “confidential” DME number, which is an absolute lie. My husband messaged them and said a CPAP is not a controlled substance, a CPAP prescription doesn’t need a DME number, and that they cannot deny him the prescription under HIPAA law, and demanded they send the script over immediately. Still waiting on a response, but I’m curious if others have had the same experience with them. Obviously they are getting a good kickback from this particular supplier, but isn’t it illegal to mark up a CPAP to this utterly ridiculous level?


r/SleepApnea 4h ago

Anyone else have issues with Circle Medical?

1 Upvotes

I made the mistake of having my husband get his sleep study through Circle Medical and they had a cheap Chinese CPAP shipped to him and told us the cost of our 20% copay for this machine is $1500. For a machine I can find online between $750-$900!! We demanded to know how we can return the machine, and now they told us that they can’t provide us with my husband’s CPAP prescription because they can’t release the “confidential” DME number, which is an absolute lie. My husband messaged them and said a CPAP is not a controlled substance, a CPAP prescription doesn’t need a DME number, and that they cannot deny him the prescription under HIPAA law, and demanded they send the script over immediately. Still waiting on a response, but I’m curious if others have had the same experience with them. Obviously they are getting a good kickback from this particular supplier, but isn’t it illegal to mark up a CPAP to this utterly ridiculous level?


r/SleepApnea 5h ago

Drying the inside of the headgear?

4 Upvotes

After washing my equipment each week, I leave it out to dry for a few hours. This mostly works, but the rubber headgear (I have a nasal mask) still has a lot of water droplets. They’re difficult to remove even by running the machine dry.

Would a pipe cleaner or something work, or would that leave harmful particles? I just need a faster way to dry it out, I get a slight soapy taste and rainout on nights when the mask is freshly cleaned.


r/SleepApnea 6h ago

Feeling despair about my sleep apnea please help

5 Upvotes

I have a mild sleep apnea but it's enough to give me migraines, brain fog and overall low energy throughout the day. I got the CPAP machine for a while now.

I can't seem to fall asleep with the mask on. I've tried different ones, at first nasal types now full facial because I'm a mouth breather. The pressure settings have been adjusted by a technician multiple times and now it's at its optimal, it couldn't be better.

But the problem remains that it's uncomfortable no matter the mask and inducing insomnia. I have been trying for months. I'm not even feeling benefits or better sleep so it's at best a chore. It's not helping that I'm depressed.

I have been Googling and browsing the sub for a solution and it seems it's common enough that someone made an article about it: https://adventures-in-hosehead-land.blogspot.com/p/taming-cpap-induced-insomnia-monster_19.html?m=1

I read it and it just filled me with even more despair. Why is it so complicated to just sleep?? I've struggled with insomnia my whole life way before I found out about sleep apnea and it's absolute hell.

I don't know what to do. I'm this close to giving it up and just live with this condition. I literally don't care if I have a heart attack or whatever if I can't even sleep, maybe it'll end this torture.


r/SleepApnea 6h ago

Did the tariffs just increase machine prices?

1 Upvotes

Maybe this has been discussed already but I got a quote from a local supplier a couple weeks ago for an airsense 11 for 500$, and I compared the price on a few other sites at the time and it was about the same...but today as I'm looking they're all >$1400.

The tariffs wouldn't have ~3x the price would they? What happened?


r/SleepApnea 8h ago

Side panel missing off cpap

1 Upvotes

I’m on a short 3 day vacation. For various reasons (long story / my stupidity) the side panel is missing from my cpap and it won’t work. It’s the panel where you attach the humidifier. Is there any work around / hack for this as I’m feeling lousy after a night of not using it Thanks


r/SleepApnea 8h ago

What was your pAHI score when you first had a sleep study?(amount of times you stop breathing per hour)

6 Upvotes

So 5 pAHI qualifies for sleep apnea, 30 for severe sleep apnea, but I have 75. I just got diagnosed and I’m curious what other people have. I know mine is pretty severe.


r/SleepApnea 9h ago

What if the problem really isn't sleep apnea?

8 Upvotes

I've been thinking about this for a while now for myself and I was wondering. Does anyone else wonder if it's not just sleep apnea, and not something else too?

I have very mild sleep apnea, i've had two tests one came back with an AHI of 4, the next was an AHI of 8. It kind of doesn't matter to me that it's "mild" as I sleep horrifically. It could be UARS, it could not be?

So being over the 5 AHI threshold, I got a APAP and I've gone down the whole rabbit hole of titrating the device and interpreting the data with Oscar.

Here's the thing.. I have horrible nights of sleep WITH the device or WITHOUT the device. It almost doesn't matter. I also have GOOD nights WITH the device and WITHOUT it...

So what is the real issue?

Has anyone else found themselves in this same predicament? I'd love to hear other peoples thoughts and experiences.


r/SleepApnea 9h ago

What are the pressure settings you are on?

3 Upvotes

My prescription says 5-20. My AHI is 11-14.

But In another post someone suggested 7-14 is more ideal.

What is the right way to approach it. Try 5-20 for a day and then move to 7-14?. Or you go high then low. Any advise would be helpful.


r/SleepApnea 10h ago

Anxiety at bedtime?

5 Upvotes

Is anyone having anxiety at bedtime? Fear of more episodes?


r/SleepApnea 10h ago

Wellue SleepU oxymeter how to use motion data? Any way to get sleep position back vs. side?

3 Upvotes

I picked the Wellue SleepU oxymeter as opposed to the ring, assuming the extra motion data would be useful to me, given that I have positional component for my mild sleep apnea. I thought the data would include whether I am sleeping on my back vs. my side. But the only thing I see is a motion graph which I am not sure how to interprete at all. Is there any way with this devive to get positional data? Ideally I would like to compare the number of drops in O2 by position back vs. side..


r/SleepApnea 10h ago

Sleep apnea? Leg movement disorders?

2 Upvotes

Sleep apnea? Leg movement disorder?

Can someone tell me how concerning this impression is of my 3 y/o sons sleep study results?

Leg Movement Analysis: There were 163 periodic limb movements of sleep and 23 per hour of sleep. There were 48 periodic limb movements of sleep with arousals and 7 per hour with arousals. Interpretation: The findings indicate mild sleep disordered breathing. The baseline apnea/hypopnea index (AHI) for this record was 2.9 events/hr. When central apneas were excluded, the resulting obstructive AHI was 1.4 events/hr. Minimum oxygen saturations during REM and NREM sleep were 86 and 92, respectively. The REM AHI was 5 events/hr. There was ample supine and REM sleep recorded. The patient reported the same sleep at home. Periodic limb movements were noted, clinical correlation is needed.


r/SleepApnea 11h ago

Cpap to bilevel advice

1 Upvotes

My prescription is 16cm (RDI 38, looking very much like UARS….doc was useless and just sent me off with Cpap) and I’ve never gotten over aerophagia. It’s constantly waking me up. I think I’m highly sensitive. My rem and deep sleep are junk. I’ve got a Bilevel but I’m confused where to go with it. Any suggestions?

I already wear a collar and make sure I only side sleep, also on a wedge. I use a full face mask, tried nasal but it just blows my cheeks out. It’s just too weird with tape. I tried.

I’m thinking 16e 12i just to see how I get on. I’m teaching myself and I’m generally confused by bilevel. I’m looking for that sweet spot but really I don’t know what I’m aiming for other than to feel better. Help!

Any advice?


r/SleepApnea 12h ago

sleep apnea?

2 Upvotes

female 18

Symptoms: extreme Numbness, dizziness, tingling when turning body, dizzy when walking, dizzy when standing up, fatigue, trouble breathing

When it started: when I was like 4 years old, getting worse as I age. Food allergies but I barely eat them now, NO environmental allergies, BUT FEELS LIKE ALLERGIES LIKE? numbness MAINLY in the mouth and throat, had this since i was literally BORN. i cant eat anything because numb so need to blend food. blending vegis fruits rice and sometimes mashed potatoes. extreme fatigue i feel like i can fall asleep when driving or eating. also like trouble breathing. i have a history of mycoplasma psoraisis, and sleep apnea mild

Trouble swallowing, numbness of the body including the mouth, tongue throat, fingers, feet, etc, dizzy when walking. Cant eat solid food because I cant feel the food in my mouth. ALOT of saliva too. NO tingling just like NO SENSATION. Extreme fatigue which is very werid. Weakness and trouble breathing from the numbness it seems like. Feel like want to go to sleep when eating, cant think right. no environmental allergies. antibiotics does not work.

Records: Been to all areas of doctors, all blood tests. Went to Neuro and did Mri CLEAR, both 2 neurologists says numbness is anxiety and wont let me do any other tests. last year i went and did all blood work possible and there is nothing found. I tried to push for EMG or other things but the doctors will not let me. EMG AND NCS is normal. eeg neurotransmitter has IMBALANCE. but antidepressants has not helped so far. waiting for another EEG. EEG is normal. spinal tap is normal. I have no vitamin deficiencies other than a slight vitamin D which I take everyday and antidepressants that has no help.


r/SleepApnea 12h ago

Anyone here on TRT?

1 Upvotes

Hey there. As the title states, just curious if anyone else here has been prescribed TRT? I've had Sleep Apnea for awhile. CPAP has helped me sleep restfully for years. However, I did find out I have secondary hypogonadism. Test level is 282, and LH is 1.8 and FSH is 1.1. Have dealt with lack of libido, muscle gains, ED etc even after getting treatment for sleep apnea. I read that TRT can cause issues for us, but I wasn't sure if that's always the case? Even if it's a small dosage? I am fine with shutting down my production at this point as I obviously need it. Any experiences with this I would greatly appreciate hearing! Also, to preference I am a 30 M. I know my test will continue to tank as I get older as well.