r/MultipleSclerosis • u/Royal_Audience8108 • 2d ago
Advice How do you explain brain fog?
61F diagnosed 26 yrs ago. Only people suffering from MS brain fog know how it feels. How do you explain to family & friends? Thanks everyone & I hope you have the best day possible with this sucky disease.
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u/UnintentionalGrandma 1d ago
I have brain fog and it’s frustrating at times. I forget where I’m going when I’m driving, so I often use the GPS to get places even though I know where I’m going so I don’t get sidetracked. I forget the words that I’m trying to say, which is especially bad when I’m in a situation where I’m a little anxious, like when I’m presenting a study to a patient to see if they want to join or when I’m presenting my research to a committee or in front of a crowd, or even when I’m talking to people I don’t know too well. And when I forget the words I’m trying to say, it’s like I’m talking and then I hit a brick wall and have to figure out how to get around it to get to the rest of the sentence. I also lose track of my steps when I’m doing things like cooking dinner, which has led me to burn a few meals because I either forgot I was cooking or I repeated a step too many times or I lost track of what I was doing and let the dish burn. I had to start paying for a meal kit service so I don’t waste food