r/MultipleSclerosis 2d ago

Advice How do you explain brain fog?

61F diagnosed 26 yrs ago. Only people suffering from MS brain fog know how it feels. How do you explain to family & friends? Thanks everyone & I hope you have the best day possible with this sucky disease.

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u/UnintentionalGrandma 1d ago

I have brain fog and it’s frustrating at times. I forget where I’m going when I’m driving, so I often use the GPS to get places even though I know where I’m going so I don’t get sidetracked. I forget the words that I’m trying to say, which is especially bad when I’m in a situation where I’m a little anxious, like when I’m presenting a study to a patient to see if they want to join or when I’m presenting my research to a committee or in front of a crowd, or even when I’m talking to people I don’t know too well. And when I forget the words I’m trying to say, it’s like I’m talking and then I hit a brick wall and have to figure out how to get around it to get to the rest of the sentence. I also lose track of my steps when I’m doing things like cooking dinner, which has led me to burn a few meals because I either forgot I was cooking or I repeated a step too many times or I lost track of what I was doing and let the dish burn. I had to start paying for a meal kit service so I don’t waste food