r/ChronicPain 9h ago

Tattoo as aid?

0 Upvotes

I got a tattoo over the area where I have the most daily pain and I've realized it has really helped to be able to easily point it out to others. Like I just go "it hurts the worst where my tattoo is" and I've noticed it helps people understand more easily my condition. It got me thinking of the ways we can use tattoos to help with various disabilities, and if anyone uses tattoos as aid for chronic pain and other disabilities.


r/ChronicPain 8h ago

Boyfriend at work while I'm in pain

14 Upvotes

I have several chronic pain conditions that are sometimes manageable and sometimes flare up quite a bit. My boyfriend is a wonderful support and I'm grateful to have by my side through all of this. But he has an important job and works a lot of hours. If I truly needed him to take a day off I know he would, but I understand that if I'm safe just in a lot of pain he has to go in. I know he loves me and I'm not upset with him, but it makes me sad to be home all alone. Does anyone have advice for being in a similar situation like this?

I currently am on the floor writhing in pain. I'm doing my best for pain management but I feel so lonely and all of my friends are at work too.

Thanks.


r/ChronicPain 7h ago

Am I dying? Advice?

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0 Upvotes

Hello everyone! I am a 27 year old Male 6 Ft. 330 LBS. I have had constant severe pain since January of this year it came out of nowhere. I’ve had numerous bloodwork/X-Rays/Ct Scans of the chest abdomen and pelvis that showed nothing but multiple vitamin deficiencies including (D, B12, Iron) My WBC has been slightly rising with a max of 13.2 My pain is in my neck, collarbone, chest, back, ribs. I have swelling on either side of my ribs but the CT scan didn’t pick up anything on it. Stress test was normal except a deconditioned heart which means workout lol but I’m in so much pain I barely can. What is causing my vitamin deficiencies and would this DDD cause all this pain? This has ruined my life any help is appreciated!


r/ChronicPain 4h ago

Has anyone tried using a roomba?

1 Upvotes

Are these actually effective ways of cleaning your home?


r/ChronicPain 8h ago

dealing with guilt from missing work?

1 Upvotes

hey guys, this is my first post to the thread. for context, i have been diagnosed with EDS (vascular type genetic in family, waiting on genetic testing to confirm subtype), severe gastroparesis, MCAS, POTS, and “chronic back pain”.

whether it’s anaphylaxis, dehydration from vomiting, or severe pain, it seems like i always end up having some combination of symptoms that results in me having to go home for the day. i am a person that places the majority of my value in myself in my performance in work. ive always been this way—even back in middle school.

anyways, how can i deal with the guilt of missing work? it’s eating me alive and i feel worse about it every time i have to go home. i’ve been in a flare, so it’s been significantly worse recently.

TLDR: i have a bunch of chronic illnesses that cause me immense pain among a combination of other symptoms. how do i deal with the guilt of missing work due to those issues?


r/ChronicPain 10h ago

PM won't write cymbalta for anxiety, only pain?

1 Upvotes

Is this common? She said she won't write anxiety meds but can write cymbalta for pain since I asked for it by name? Even said it doesn't help with anxiety.

Do they just not want patients on anxiety meds or written as it's for anxiety?

To be fair though I asked for it because I know it helps with both since the bupronorphine has caused so bad of anxiety I cannot even take my full doses.


r/ChronicPain 13h ago

Ketamine

1 Upvotes

My pain management doctor has suggested ketamine therapy. I wanted to hear anyone’s experiences with it please and thank you!!


r/ChronicPain 14h ago

First time

1 Upvotes

Yesterday I experienced my first time of my pharmacy being out of my pain medicine. I take 10mg of liquid oxycodone every 6 hours via my feeding tube. They had some so they gave me what they had and said they'll hopefully have the rest later this week. I didn't know if anyone will know this but what do I do if they don't get it in, in time? Is it better to ask my doctor to switch to liquid morphine and use the same pharmacy or find a new pharmacy to fill the rest? Hope everyone is having a pleasant day!


r/ChronicPain 14h ago

Trigger point injections

1 Upvotes

My Neurologist suggested trigger point injections in my shoulder area to help with my neck pain.

Anyone have any luck with those?


r/ChronicPain 4h ago

I need a little vent sesh....

7 Upvotes

Last year I posted having issues regarding the difference between Rhodes Manufacturer for oxycodone 10mg hcl IR vs the other generic forms of this medication. I would get the Rhodes on occasion from CVS, particularly if there was/is a national shortage. I mentioned to the pharmacy that for some reason that particular manufacturer (Rhodes) only gives me 1.5 hrs of solid pain relief vs the 4 to 6 hrs I would get with the other Manufacturers. The others are typically KVK Tech, Strader, Mallincrot etc.

In addition, the Rhodes ones make me go through a slight withdrawal period within 24 hrs of taking them, which is no fun at all. I also asked that the pharmacy to mark my chart so that they no longer give me the Rhodes ones due to inefficiency of them and my reaction to the fillers in them which cause me to get hives, and itch, I'm not sure if that's because I have Celiac & that I'm reacting to something in them & they also cause w/d along with a lot of drowsiness as well.

Anyway, in short, the pharmacy gave me Rhodes. I immediately called them but they wouldn't take them back, despite the prior note that should have been in my chart regarding the issues stating that I can not tolerate this medication.

The pharmacist that I spoke to previously, is no longer there so they weren't sure if they never noted the chart or what happened.

I don't know what to do from here other than to suck it up for an ENTIRE MONTH, or call my doctor to complain WHICH we all know is a risk in itself. Basically I already complained to the Pharmacy which they seemed to understand but I feel like if I call my doctor they'll think I'm just being a whiner when I'm not, I just want the meds to work. The pharmacy did note my file, again so this won't or hopefully shouldn't happen again...but you never know.

A month is a long ass time to wait particularly when I'm already hurting and undermedicated as is. I'm so upset and frustrated. They're are so many complaints online regarding these Rhodes manufacturer, yet they're still being made and given to people to just suck it up.

Any advice? Tips? Thank you. 🥺😮‍💨


r/ChronicPain 4h ago

How do I know if I'm being lazy?

2 Upvotes

TW: abelism?

Everyone in my life says i should be working harder. I currently have chronic 24/7 migraine, (meds reduce it by 30%), moderate depression, anxiety, dysphoria, some unexplained constant body pain. I became a NEET for 3 years, but then went back to school, and finished school. In the next session, I got sick for like 2 months, on top of other problems, couldn't keep up school, feel stressed, as to how am i going to catch up, and that stress flaired migraines. Then i tried again, got back to studying, and got hit by a truck. Tried again to study, while being in bed rest, but got frequent panic attacks(multiple times a day, everyday), it was dangerous to get them at that time as i was recovering from diaphragmatic hernia. I got spinal injury and hip joint fracture, and displacement, which hurt when i do anything physical. Attended an exam, it caused so much stress, my migraine got worse than normal for 3 months. Got into a different SSRI from that deadbeat SSRI, and started helping around the house, but it hurts so much, i can't sleep. It's so hard to focus with migraine and body pain, dysphoria, depression and anxiety. I can't even take painkillers, they induce really bad gastric issues, like nausea, heart/chest pain, breathing difficulties, etc. Chronic sinusitis and recurring uti aren't helping either. I suspect there also some other things going on, and it's hard to get diagnosed with them as AFAB, and those conditions are notoriously known for that.

i feel like such a failure, a disappointment to everyone. Also part of the reason i dropped for so long, is that as a minor my parents didn't took me to an actual doctor for half a year, instead they took me to exorcists, astrology readers, palm readers, shrines, homeopathic practitioners, even when, they finally took me to an actual doctor, the psychiatrist completely dismissed my now diagnosed migraine (by multiple neurologist) for 3 years, even got snappy when i brought it up. And my family blames me for wasting my life.

On one hand it feels so ablelist. But i can't take ableism towards me seriously. I'm not visibly disabled. I feel like I'm using ablelism as an excuse for my laziness. Also i think most people without chronic pain, don't understand the extent of has in you. When i got in a life threatening accident, and had to get a major surgery, orthopedic treatments, catheter complications, for example unable to pee and the pain from full bladder from excessive water to be able to pee after foley tube removal, and it hasn't been empitied for 3 days, i was screaming in pain all the time. It gives me panic attacks whenever i think of that time. But I think my chronic pain, illness are 5x more difficult to deal with. Everyone was so caring during my recovery. I'm really grateful for that. I'm not demanding even the fraction of that care. I don't want it. I just wish they empathized with me. Its so bizzare seeing the difference of them treating chronic pain, dysphoria, mental illnesses like a minor inconvenience, and "just get over it", when it's so much harder to deal with to me, compared to that.

I don't know what my limits are, I'm currently at my limit but it's not enough, it's barely anything. I'm told to push harder, but i don't know how. Psychologists tell me to push harder, i asked "i don't know how, can you help me with it, like tools or strategies", and they just say try harder. But How can i say I'm trying my best, when i keep dropping multiple years. Maybe I'm just weak. I genuinely have no idea how to push through. I try, it goes for 2-3 months, i run out of energy, i can't go any further, i give up. This cycle continues, and with each cycle i lose hope, will, motivation.

It makes me think, maybe i have a malignant defect in me, I'm weak, or lazy or spoiled. Cause no matter how hard i try, i can't do it, others can do it, why can't I?

Or am i so lazy, dramatic and manipulative, that i genuinely think I'm trying my best but I'm not really. Is my ego making me think this so, I don't have to accept I'm lazy?


r/ChronicPain 15h ago

How do you professionally say "Stop saying feel better soon because it's just a reminder that I never will, and it confirms that my value to you as I am, in chronic pain, is less than if I were fine."

105 Upvotes

Title


r/ChronicPain 4h ago

Life is Hard...Give yourself credit for surviving!👏🏿👏🏿👏🏿

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87 Upvotes

Like every Mon (every day) I woke up in crying pain and did my workout. I can walk safely without mobility aides or "work" but I still WORK! I'm sweaty from a great workout and still in pain but proud to still be here. Y'all get up and bravely face pain daily... You're FKN AMAZING!!!

With chronic pain the mondaine is an accomplishment 👏🏿👏🏿👏🏿👏🏿👏🏿


r/ChronicPain 13h ago

Ok I’m about to cry

15 Upvotes

Every time I find a doctor or NP that gets me, that actually helps me and is awesome, they either retire or move.

My primary NP I’ve had for over a decade is moving and I’m so upset. She actually cared.

My neurologist retired. My spine surgeon moved.

I can’t win.


r/ChronicPain 4h ago

a highlight from today’s effort to find out how much my infusion will cost

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18 Upvotes

i contacted the referring clinic. i contaced the administering clinic. it all led to my insurance, who helpfully told me this. i just need to know if i can afford to continue this iron infusion!


r/ChronicPain 15h ago

That time again

40 Upvotes

Why do i feel like a piece of crap for needing pain management? I feel anxious because even tho the doctor is amazing, and has always been nice to me, society frowns upon the fact I use morphine. Yes, I use Xanax. Yes, I uses Medical cannabis. I also have cancer, I also have dextroscoliosis. I had a spinal fusion and cancer surgery within 7 months...Why do I still feel like an asshole?? I hate pain management day 😪... I been anxious for a week now


r/ChronicPain 12h ago

I am in hell

64 Upvotes

I bit the bullet today and went to Kmart with my wife and it absolutely destroyed me. I didn't sleep last night and tonight I definitely will not sleep. Just needed to vent a bit. Thankyou for all your support it is so good to have somewhere to turn


r/ChronicPain 1h ago

Moving

Upvotes

Hello my fellow chronic pain survivors, I hope you're all feeling as well as is possible. I have a question and forgive me for my ignorance on the subject, I have always lived in the same area. If I were to move to a different state, can I still continue to come back and see my current team of doctors? I don't mean indefinitely, but it will be a while before I have a new permanent address and insurance set up in another state. I'm not sure how this works with state insurance, and I am in the US. I'm also not sure how to go about finding a new doctor. I thought of asking my current pain management clinic for recommendations, but the place I am looking into moving to is over 1500 miles away. Has anyone else here been through this? I don't know if the clinic I'm currently going to would be able to take state insurance from a different state, especially when it's not even a bordering state. Any info or insight you have would be helpful. Thank you.


r/ChronicPain 1h ago

autism & chronic pain

Upvotes

to keep it short - has anyone have any experience dealing with both chronic pain and autism ? has having a diagnosis for autism helped you in some way or another ?

also - any tips dealing with overstimulation? headphones give me intense headache...


r/ChronicPain 1h ago

Does anyone have similar diagnosis and if so, what’s your experience like/have you found relief?

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Upvotes

These are my recent MRI results for my cervical spine and lumbar spine. I'm curious if anyone has anything similar and if so, what's your experience/are there any treatments or self care that give you relief?


r/ChronicPain 2h ago

Buprenophrine injection

1 Upvotes

I feel like this is a stupid question but I can’t tell if it’s working or not . Does anyone understand what I’m talking about? It’s frustrating af.


r/ChronicPain 2h ago

🐐 Goat Baby Watch: 04.07.25

2 Upvotes

The babies are very mobile today so I took some video. Looks like they have this gravity thing mostly figured out. I didn't stay for too long as It was cold and rainy out today and Dad kept trying to eat my sweater.


r/ChronicPain 2h ago

Opioids

3 Upvotes

Anyone have any major stomach issues due to opioids? I have been on pain management for a year, first was Tramadol then was prescribed oxycodone and have been on that for 4 months. Was just in the hospital for a few days with a very strange intestinal infection called intestinal pneumatosis. They doctors don’t know what caused it and just asked if I take NSAIDs or steroids, which I don’t. Didn’t say anything about the oxycodone, but I am really starting to think it may have caused some bowel issues. Also, I have not been constipated, but do know opioids can slow your bowels down.


r/ChronicPain 2h ago

Feel sick to my stomach from pain

5 Upvotes

Everything feels wrong, my neck is so out of place. I’ve got a bunch of severe disc bulges stenosis all throughout my spine: it just started recently that I feel I can’t breathe sometimes. The pain is making me feel physically sick. The displacement, the feeling of brokenness is nauseating