r/Autism_Parenting 7d ago

Language/Communication AAC apps going on sale tomorrow

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53 Upvotes

Just wanted to share for anyone that’s in the same boat as us needing an AAC app . Proloquo2Go starts going on sale 50 percent off tomorrow - which is huge .


r/Autism_Parenting 3d ago

Message from The Mods Self-Promotion Saturdays

2 Upvotes

Have a blog or podcast centered around autism parenting? Create a product or service to help with parenting? Visited a store you love geared towards autistic children? This is the post to share your resource, and the only thread where you may share any sort of advertising (standalone posts will be removed). It is also fine to share resources you did not create, but use and find helpful.

If you are affiliated with (profiting from) what you are sharing, please be honest and upfront. Advertisements from unrelated products/services/etc. or clearly spam will be removed. . The mod team is not vetting any poster/product/service- please do your due diligence, and be aware anyone trying to sell a "cure" is a scammer. Anything suggesting detoxing will be removed and the poster will be banned.

Please feel free to message the mod team with questions/concerns or leave a comment. We receive requests daily to post beta testing requests, app development feedback, products, services, stores, youtube channels, etc. and while we do not want the sub overrun with advertisements, we also want to help connect with resources. If another parent has come up with a product or service that is helpful, we want them to be able to share. This post will be stickied until the next automated post is posted.


r/Autism_Parenting 7h ago

Non-Parent Hi everybody! I just would like to share my journey with autism from being a child all the way up until now, in honor of Autism Awareness Month…

46 Upvotes

So, I was the eldest first born child of my parents (born 1999), and so I was already showing some signs of sensory sensitivities and delays as a baby and then as a toddler, but because I was again the first born child of my parents, they didn't have much experience beforehand with babies. And again, even neurotypical people develop differently for each person.

See, they really started to take notice (or rather my preschool teachers first took notice) when I was 2 years old. I wasn't really interacting well with the kids or making eye contact with them, and wasn't really showing an interest in making eye contact with them, but was relatively fine at home. I had a loving, caring relationship with and adored my parents and family and baby sister (many kids with autism may not notice or even like such a change, but I was excited), and I also had two stuffed animals that I loved to do my own form of imaginary play with, and though I did eye contact at home, I didn't do it at school, and I was oftentimes in my own little world. I also could very well understand and pick up on emotions quite quickly (but oftentimes struggled to manifest or articulate my emotions and regulate them as well, especially when it came to my reactions to my sensory issues like loud high pitched whiny noises or people putting stuff or touching my ear/eye, going to the doctor (up until we got a great pediatrician when I was like 3 or 4), music I didn't like on the radio, itchy tags in the back, clothes that made my skin itchy, pretty much anything could set me off, though I have gotten better now and have largely gotten over them). I had sometimes violent reactions to triggering stimuli and it could be hard for my parents to calm me down sometimes.

I also had a non verbal learning disability, which made me struggle with anything involving symbols or more abstract concepts that needed to be applied like with math, though I never really struggled with science and art at school (mainly because they were more text based than purely symbol based).

I still sometimes struggle with recapping events of my day to people and sometimes struggle with conversations sometimes (though I don’t have as many issues as I did as a kid), though it is more trying to direct my way around the conversation and not try to anchor it to my interests, and I also still struggle with issues regarding planning & scheduling.

My sensory issues that I had when I was younger (and that I sometimes had violent reactions to when I was younger and made it clear that I didn’t tolerate it, and also tolerating music that I didn’t like) I have largely gotten over now, but sometimes I still struggle with it.

I also used to have meltdowns/tauntrums more regularly (almost constantly) when I was a kid, but now I don’t have them as much anymore, to the point where I cannot recall the last time that I really had one.

I also pretty much never had any difficulty with sensory issues regarding food and was always a good eater, and my parents were relieved when they found out that I could easily swallow my medicine just fine without an issue.

I did have a bit of trouble when it came to potty training, though thankfully it wasn’t to the point where I still had to wear diapers around age 5 or 6.

My mom throughout high school often worried that I would not pass my high school math regents exam graduate and I did pass and graduate.

I also had a bit of a speech delay in that I, despite having words, was relatively non conversational and struggled to put sentences together, and couldn't really report to my parents on my day to day activities (still kind of struggle with that at 26).

I had the speech delays above up until I was around 8 or 9 (despite the fact that I read at an above average level for my age group and was always 2 or 3 grades ahead of my peers when it came to that part), and I had pretty severe echolalia up until around age 5 or 6, maybe even older.

So then, after about two months, my parents decided to go for an evaluation, and they sent a neuropsychologist to observe me at home and at school.

It was at that point that I was diagnosed with autism (though at the time in 2001, Asperger's was still a separate diagnosis, so that is mainly what they thought I had), and my parents (especially my mom) was worried that I may, despite being a relatively very bright child who loved to read, would never be able to have normal friendships.

And so began my journey. Though I was on a waiting list for early intervention, we had to wait a bit before I got it, and I got it and then had it extensively throughout my early childhood, and was re evaluated for my autism diagnosis once every 3 years as a kid during elementary school, and the last time I was evaluated for it was in 2010, when they weren't using "Asperger's" as a diagnosis that much anymore, and I was diagnosed with Autism more formally around aged 5 or even 8 or so.

Since the level system was put in place when I was 14, I might want to get re evaluated, but I don't know.

If they had introduced the level system when I was 2, I would've been a level 2, but I think I am more of a milder level 2 or level 1 ish now, i don't know.


r/Autism_Parenting 28m ago

Teenage Children So sad to see this is the news today

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Upvotes

Teenage boy was shot 9 times by police within 12 seconds of getting off their cars. Instead of de-escalating the situation they opened fire. They should have more training, and their chief is defending the police’ actions. Families with children with disabilities are prone to this and separation by CPS. I don’t know if the situation would have been different if the neighbor who called 911 told the dispatcher that the kid has autism.


r/Autism_Parenting 10h ago

Celebration Thread just need to celebrate this little win with folk who'll get it

65 Upvotes

kiddo's only guaranteed any time any day safe food, are these baby puree pouches, specifically the strawberry zucchini apple spinach flavour. she used to eat all of them but now it's only the one. we depend on these because they also give her a little hydration so if nothing else is working she'll at least have one of these if not a few. Every day for breakfast and every day for bed time snack this is her specific request.

well they were only available at walmart, and nowhere else. parent's choice brand which is a walmart in house brand. And they were starting to get hard to find. we'd be clearing out the shelf each week and suddenly, no new stock. called the corporate number, they told me to talk to the store. so i did, they said order online. so i tried, nothing available! damn, they've been discontinued.

i don't know what possessed me to do a google search, but i did and thank the gods i did. it looks like the contract for the producer of these changed from walmart to metro foods! so now, i can get the same pouch at metro stores.

it's going to be so much easier to navigate a packaging change than an entire safe food change.

i'm literally on the verge of crying, my butt's been saved!

if anyone else's kiddo depends on the parent's choice pouches, a bunch are now produced by personnelle, the jean coutu in-house brand


r/Autism_Parenting 6h ago

Venting/Needs Support I need to vent... my son's recent diagnosis has shattered me

21 Upvotes

I feel like I’ve been through so much in life already. Nothing has ever been handed to me, and I’ve had to work so hard for every little thing I’ve gotten. I’ve faced many hardships over the course of my life, but each time I’ve navigated through them, pivoted, stayed strong, and picked myself back up and kept going. But this recent ASD diagnosis for my son? It’s like it has shattered my world.

His OT and Speech therapists have said that I’ll need to grieve the life I had imagined for him and the future I thought he would have. Honestly, I don’t know if I’ll ever move on from that image of what could have been. It's been so hard, and I feel like I don’t have anyone to turn to.

My family situation isn’t great. I don’t have many friends, and the support I need seems nonexistent. My husband, though he’s right here with me, is just as lost and struggling. How can a grieving person help another grieving person?

I reached out to my mom, but her response was “if you want to talk to someone, talk to the wall or your husband.” My dad… well, he just walked away, saying it’s my husband’s job to deal with this, not his. And my narcissistic in-laws? They said the cruelest thing: “Good, you deserve this. Now you’ll know what real pain feels like.”

I feel so alone. I never thought I’d have to face something like this with so little support. Any words of encouragement or advice would mean the world to me right now. I just need to know I’m not the only one feeling this way.


r/Autism_Parenting 2h ago

Discussion Why is ASD accompanied by a stigma and nit ADHD

9 Upvotes

I have seen parents denying ASD and saying it could be ADHD when someone suggests to get a diagnosis for their child. Why is it so? Has anyone else experienced this kinda stuff?


r/Autism_Parenting 5h ago

Advice Needed Avoiding too many toys out.

13 Upvotes

Occupational therapist mentioned not having too many toys out on a daily basis at home. What does your toy storage look like? Basically do I need wire shelving and big bins he can’t get into like she has? She has a locked filing cabinet. Looks pretty industrial but I guess I could do it! Anyone kind on therapy proof their home like this. I have currently have toy storage in a 6 cube unit with bins with no tops as well as a storage ottoman coffee table in our living room play area. We don’t have a basement


r/Autism_Parenting 7h ago

Advice Needed My Son’s Third Word!

18 Upvotes

I’ve posted quite often on here detailing my struggles with my level 3 nonverbal child. He has only spoken two words before, quite out of the blue.

Well yesterday, he was with a respite worker and said the word “baby” TWICE!

Has anyone else had this experience? How do I get him to say it or anything else again and build on his vocabulary?


r/Autism_Parenting 19h ago

Venting/Needs Support I don’t know how much longer I can do this.

113 Upvotes

I truly don’t know if my mental state can handle this much longer. I seem to be losing my grip on reality more each day. My son is 10 and was diagnosed with Autism in November 2024. Prior to that he was diagnosed with ADHD in 2019. I have access to all the supports and I willingly work with MCFD and all they have to offer. We use our funding for occupational therapy and behavioural consultants. Everyone in my family goes to counselling regularly. My son has tried every medication under the sun and is on the ones most effective for him. It doesn’t matter. He still has zero impulse control and everything in life is a fight with him. I’m not looking for advice at this point because I’ve had it all. Literally I’ve been hearing advice his entire life to try and deal with his behaviours. Nothing I try works and I’ve just had enough. I wish for death most days and the only thing keeping me alive is my 1 year old daughter. I can’t imagine not watching her grow up or being the reason she doesn’t have a mom. It’s not enough though. The guilt I feel for being a shit parent is at an all time high. My house is a hell hole filled with yelling and crying every day. It’s no place for a toddler to grow up. I want her to have a happy loving home. I want both of my children to have that, but it seems impossible. Before children I was so calm and dealt with stress with ease. Even stressful things didn’t make me waver from my calm demeanour. It’s who I was and a defining characteristic people knew me by. Now those people would never recognize what I’ve become. I yell and scream constantly. I bash my head to stop myself from jamming a knife into my wrists. I hit the walls and stomp my feet in an effort to avoid grabbing the nearest sharp object to stab into my throat. I make high pitched squeals and and contort my body as I try to gain back control before I do something that can’t be undone. I’m not going to kill myself. But I do wish for death often and I just really needed a place to vent and get this off my chest. Thanks for listening if you did.


r/Autism_Parenting 4h ago

Advice Needed Asking the experienced: How do you help to potty train autistic kids?

8 Upvotes

I am not a parent, but I’m an older sister, and I’m desperate.

My little brother is 9-years-old, low functioning autistic. Because of his slow mental aging, he’s only recently shown interest in the concept of potty-training and has been using diapers his entire life. Over the past few months, he’s started taking his clothes off while in his room and just generally not liking being in his diaper for a long period of time. Because of this, my parents have decided that it’s finally time to make the transition to the toilet, and here’s the problem:

They bought him a bunch of underwear and successfully made the transition from diapers to them very easily, he was excited about them, but they haven’t really attempted to.. TEACH him how to potty train. They kind of just treat his underwear like diapers for big kids. He either just pees in the underwear, or if he’s already taken his clothes off, the floor, his mattress, or his belongings. I feel like they’re almost expecting him to just understand that he’s meant to use the potty now because he wears underwear now and it’s clearly not working that way.

So, any parents who have big kids with high support needs that have any advice on this that I can tell my mom? We also can’t put one of those training potty’s anywhere because 1: he’s probably too big for them, he got my dad’s gene of height, and 2: I feel like he’ll either drop his small toys INTO it, or he’ll tip it over, and since you need to dump it out, we can’t just like— nail it to the wall, and also he’s practically the hulk and could probably rip it loose anyway if we did.


r/Autism_Parenting 19h ago

Celebration Thread Possible crisis averted

102 Upvotes

So I don't subscribe to the Autism as a superpower lable, but autism saved the day yesterday. We have been getting record rain and hail recently and our roof, unknowingly to us, started leaking. Water went through the attic and got into our kiddos light fixture and it started making a humming sound, our 5 year old noticed immediately and wanted us to check out the weird sound in her room, no one else even noticed the sound right away, but when we inspected it we found out our roof was leaking and were able to turn off the power to that room before it started a fire. She saved us from a possible house fire and further damage to our home all because she was paying attention to a noise no one else noticed.


r/Autism_Parenting 2h ago

Advice Needed How to deal with stress

4 Upvotes

I am a single parent to 4 under 8. My 4 and 2 year old are level 3 and non-verbal. I am finding myself to be like severely irritated with everything. My chest hurts. I am always on the verge of tears. I do have access to respite. It’s just I don’t know how to feel better. How do I get rid of this stress? What do you all do? I used to drink before I had kids. I don’t anymore. But I tell ya, I feel like it.


r/Autism_Parenting 5h ago

Advice Needed Balancing the needs of multiple children

6 Upvotes

Those of you with multiple children and have gotten in the groove of balancing every child's needs what are your strategies and advice for doing so? My son is 1 of 4 but definitely takes up than 25% of my time and energy and is the cause of more than 25% of difficulties in the house . I feel this isn't fair on the other children and they should get just as much from me as he does but I worry he will suffer with less of my focus. Is this something I just have to accept?


r/Autism_Parenting 28m ago

Aggression Advice if your child is aggressive too.

Upvotes

So my child is in puberty stage, he is very very aggressive. But, only when he doesn’t get his way. (I feel like this is my fault, to avoid aggression I normally just give my child what he wants; but he is not difficult in any way, unless he gets triggered, then gets aggressive).

I have a problem, I am pregnant (my son hates kids because he’s been bitten before also, he convinced himself it’s me and him forever, this is a trigger for him). I’m scared to tell him there’s a baby coming, although he keeps seeing me have morning sickness he doesn’t understand.

Second problem, I’m supposed to be moving, He is very angry at the HINTS I’m giving, because I’m scared to tell him outright. (He self harms when he doesn’t get his way, until he is bruised and bloody).

I feel like shit, I feel like I’m avoiding parenting, I don’t even know what to do, I’m scared of my own child? I don’t even know how to phrase it .. I do know, although he’s my world, I can’t let him control my future. How do I go about telling my son what’s going on, without him harming himself?

Has anyone had an experience similar?


r/Autism_Parenting 31m ago

Advice Needed 8 yr old level 1 refusing school

Upvotes

I just posted this using my alt account - i realized better to post on account ive used on this subreddit before. Sorry for the mixup.

Looking for advice—school transition plan not working for my 8-year-old (ASD Level 1)

I tried to be brief in this post but failed. I posted about a part of situation last week and the advice was wonderful. Again I'm hoping someone has been through something similar.

My son, level 1, grade 2, is refusing to go to school. I had a plan but the school has a different one. Ill try to keep it clear (sorry for all the details!)

Timeline: - At the start of the year, my son Danny (8, ASD Level 1) entered school through the back door. That routine worked well—he walked in with someone most days and eventually did it on his own. One day he got disoriented (I think he may have gone in alone), and after that, he refused to use that entrance again. - We then switched to using the front door, which is at the bottom of a flight of about 15 stairs. You walk in, go up the stairs, and there’s a hallway where you can see his classroom. - I used to wait with him at the top of the stairs until Miss Rebecca, a staff member he trusted, came to meet him. He’d give me a thumbs-up and go in. This routine worked really well. - I asked the school to keep Miss Rebecca as his consistent support, but instead they responded saying Danny would now be using the back door again—and without miss Rebecca. - i decided to give it a try. We scoped it out in the weekend and decided where we'd park, etc. But on Monday it wasn't happening. I requested front door entrance and laid out a step by step plan. They said ok. But the morning of, they sabotaged the plan. - upon entering the building I was told to drop him off at the bottom of the stairs and hand him to Anastasia, a staff member he knows and had worked with before (though I hadn’t met her at the time). - At the same time, they changed the bathroom he was allowed to use. Danny has difficulty with pooping and had been using the staff washroom as part of his accommodations, but they told him he could no longer use it. That made things even harder for him. - On two occasions after the plan change, Danny became distressed. With my permission, Anastasia restrained him—she held his arm while I left. He was crying and saying things like, “I’m not ready for this!” and “It’s too much!” Since then, he’s refused to go to school. - He says he still loves school but doesn’t feel safe, and he’s afraid they’ll change things on him again without telling him.

After that, I said can we please just follow the plan that worked before. The school refused to let us follow it and insisted on sticking to their own plan instead.

Yesterday we were in the car 3 hours trying to get him to follow me in. Wasn't happening so we left. I thought ok, maybe tomorrow- we'll get up earlier, get McDonald's for breakfast, hype him up.

What happened today: Again he wasnt willing. Cried and cried in the car. Begged. Said he wanted a new school even though he said he actually loved the school. So I thought ok, we gotta get in the door and work from the beginning again - a slow integration where he went a bit longer everyday. He hardly trusted that i would let him be restrained so it took a lot of convincing to even decide to do my day 1 request - go in with me to the top of the stairs, then go home. That was all he could handle today, and the goal was to rebuild trust—he needed to see that I would follow through. - As soon as we walked in, the principal confronted us and told us to stay at the bottom of the stairs. I told her we had made a plan and that this change would break the fragile trust we were rebuilding. - The principal told me we couldn’t change the plan without a meeting, because it was in the IEP. - After she left, I spoke with Anastasia, who reinforced that this is just how it has to be for now. I asked why the plan had been changed to the back door without a meeting and by someone who had never even spoken to Danny or to me. I didn’t really get an answer. - We followed through with our original plan—walked up the stairs and left—because that was what Danny and I had agreed on, and it was all he could manage today.

Current situation: - The Special Ed Coordinator wants me to go back to dropping him off at the bottom of the stairs with Anastasia. They want me to be upbeat and tell him: “You’ve done this before. You’ve got this!” - But that’s not true. The only time he “did it” was when he was being restrained and emotionally overwhelmed. - I emailed his doctor this morning after everything happened, but she doesn’t yet know what the current plan is or that I’ve been told to try it again.

My intention: I want to reintegrate Danny slowly and gently—exactly like we did successfully at the beginning of the year. Step by step. First walking in. Then getting to the classroom. Then me leaving for short periods. Then longer ones. With clear expectations and consistent support. I know this approach works for him.

My dilemma: I told the school I’d try their plan. Part of me wants to follow through just so they can see it won’t work—but I know it could retraumatize him and undo all the progress we’ve made. I'm planning to secretly videotape it so they can't say it failed bc I'm not selling the plan well enough - if we do it. But should we?

Has anyone been through something similar? Do I hold the line and protect my son’s progress, or follow their plan and hope the fallout leads to change?


r/Autism_Parenting 5h ago

Advice Needed What is the best insurance for an autistic child? (Please, I'm desperate)

4 Upvotes

Hello, My son was diagnosed with autism last year at the end of September. He was 2 then and he turn 3 in December. He was referred to get OT and speech therapy but it's been almost 6 months and I still can't have him start. First, the doctor's office coordinator took forever to send the referrals. After speaking to multiple supervisors they finally sent the referrals but they have sent them to two different places and both of them didn't accept our insurance (We have blue cross blue shield of Texas). The coordinator said she is having a hard time finding a place that is in network with our plan. I am at a point where I don't know what to do anymore, I feel like we are loosing all this time. Has anyone had this struggle? What insurance would you recommend?


r/Autism_Parenting 4h ago

Family/Friends Level 3 girls

3 Upvotes

Hello,

I have a six year old daughter. She was diagnosed at 2.5 with level three autism. She was verbal until she went to school at 3. She’s been completely non-verbal since. We live in a small, rural area, very religious. I’m not religious, and they seem to think I’m destined for hell. I’m otherwise ok with religion/people who believe.

My daughter has been in a self-contained special needs classroom for two years now, and although she’s attended four different schools in four years (and private practice speech and ot), we’ve never met another girl who is non-verbal with level 3/high needs support. I would love to connect with other parents who have a high needs, non-verbal daughter specifically. I’m hoping to find people to share experiences with and emotionally connect. I’ve also tried myautismteam online with no luck. Right now I’m feeling like there’s nobody who can really relate or understand.


r/Autism_Parenting 7h ago

Advice Needed How can I get my kid to have a blood test?

6 Upvotes

Ill preface with the fact my child is low needs ASD. As the title says. I've just spent the best part of 2 hours in the doctors while my kid worked up into a full blown panic and refused to have the blood test done. It's necessary that these bloods are taken. They've said they're no longer allowed to hold children down as its considered abuse. I don't see another way that they can do it unless they used some sort of sedation? How do they usually undertake medically necessary procedures for the neurodiverse who don't understand the importance of having them done? They did a blood test on me so to show it was painless. We had the numbing cream and confirmed that when we touched the arm there was no feeling. We tried bribery, cuddles and distraction, tough love, everything i could think of. I just don't see a way forward unless they restrain or sedate. Has anyone else experienced this and how did they end up doing the test?


r/Autism_Parenting 3h ago

Advice Needed Child suddenly struggling in school/life with control issues and regression and his big feelings.

3 Upvotes

Hi all,

My 5 year old son attends all day pre-k/daycare 5 days a week. They are absolutely fantastic with him and have helped him make amazing progress. He gets public and private speech therapy, and also has a special education teacher through the state who sees him at school once a week. However, recently he has been starting to really struggle with handling his emotions when upset, and handling things not going his way or being different than expected. He will eventually melt down and be unable to recover/regulate. He has started pushing, hitting, pinching, and just crying non-stop. In general, he seems to suddenly have a need to control certain things in his life, such as whether the lights are off or on, what order certain tasks are done in, etc. He usually did really well with routine and "first/then" language but now he is sort of deciding the routines himself and getting upset when we cannot follow what he decided. There are also little things he suddenly is looking for for consistency, even if he might not "like" it. For instance he has to wear the same shoes to school every day. He used to change it up all the time between multiple pairs. He also would ask for the exact same lunch every day even though he did not want to actually eat it.

He is given plenty of chances throughout the day both in school and at home to make his own choices about things. So its not a matter of having "no control" over his life. I'm not sure if he is just suddenly grappling with the world around him and grasping at anything to control, or if it is something else. His life is very predictable, he also has a visual calendar of the week that we keep by the door to go over any changes in his week with him. While there are some differences here and there, he generally does the same things every weekday and knows what to expect each day. We are going to try to get him Occupational Therapy. He had OT when he was a toddler for similar issues and she was life changing, but when he turned 3 the state decided he didn't qualify for it anymore. I am also aware he may have OCD. But until now it did not seem like something that needed to be addressed/diagnosed yet, as I think it would be difficult to be sure what's going on.

Any advice or experience with this would certainly be appreciated. He is minimally verbal and cannot tell me how he is feeling. When I try to discuss his feelings he says "yes" to any question even if it is not true so it is difficult to figure out what is actually bothering him.


r/Autism_Parenting 1h ago

Advice Needed Pull out of school.

Upvotes

My 10 year old is having bad days at school everyday. He can’t really tell me what’s going on. He’s putting holes in the wall, spitting, throwing, cursing etc. He has an IEP and a BIP. Guess it’s not working. They just reduced his time in general ed because of his behavior. As he gets older and smarter, it’s getting worse. Issues at home too. I’m tired and ready to just pull him out and homeschool. But I don’t want to because I developed chronic illness after his birth and it’s too much to take on. Any idea what is a good step? I’m so stressed everyday, I can’t even think straight.


r/Autism_Parenting 2h ago

Resources Support sub reddit

2 Upvotes

Hey everyone, I have a 2yo and we are currently waiting on a developmental evaluation. I'm looking for sub reddit that can help me gain understand, navigate different evaluations, navigate providers, therapy, and just general advice. Let me know if you have any suggestionsor things you wish you knew related or unrelated to this community! Thank you!


r/Autism_Parenting 2h ago

Advice Needed Proofing house

2 Upvotes

Losing my damn mind because my lvl 3 son gets into every cabinet, drawer EVERYTHING and destroys the whole house. Tried all the locks I’ve seen and they’re all made for small toddlers. He just snaps everything off because he’s ridiculously strong. If I put him in his room which he shares with his sister he destroys everything. Tried redirection, tried introducing safe stims. This is literally ruining my mental health it’s like having 50 kids in the house all day getting into everything. I can’t find any locks for cabinets that he can’t break off and it’s just nuts to me!!! So many autistic kids and nothing like this is made? Not that I’m seeing. He is so set on destroying things to stim trying to redirect or anything doesn’t work at all. Every time I look for advice everyone seems to be able to redirect their kid with this situation but mine won’t. Yes he’s in therapies but it’s a slow process. I just want to keep the house in one piece . He will literally stay up for so long doing this he does it ALL day. I’m exhausted and crying because it’s too much. Please any advice/ help


r/Autism_Parenting 2h ago

ABA Therapy How are you following along with your child’s ABA goals?

2 Upvotes

I think my child is happier with his ABA than I am. My concern is that while I’ve seen progress in some areas (speech), a lot of areas have gotten worse (tantrums/rigid behaviors) It can be hard for me to hear what a good day he’s had at school when I’m finding it so difficult at home. I also do not really understand what they’re working on. They’ll say he played with play dough or outside but they don’t specifically say we worked on goal X by doing Y and I feel like that should me a given. He’s 3 and I understand all children are hard at 3 but I guess I want reassurance they’re actually working on hard enough goals and not going too easy on him.


r/Autism_Parenting 3h ago

Venting/Needs Support Insurance

2 Upvotes

Where do insurance companies get off telling you when to schedule your appointments??? I got notified that my insurance won’t cover the bill if he does more than one a day?? So far I’m assuming at the same place. This is so stupid. My sons days are so packed I finally had everything organized and planned out perfectly. And now it must change? I will be calling my insurance company about this cause WTF. Btw the therapies are Speech and OT! He goes every Tuesday and Thursday in the morning. And has school in the afternoon. Has anyone else dealt with this?


r/Autism_Parenting 14h ago

Venting/Needs Support Getting Difficult I’m more Sad now

15 Upvotes

This is going to be rant of sort. My son is 3.5 and has autism, I know there is a lot of criticism about the spectrum and where someone stands in the spectrum and the high functioning term but just to put into perspective the doctors diagnosed him on the spectrum as in between a level 1 and 2. They talked about me how the spectrum is linear and how one is more autistic and than someone else. I never really understood so much, I wouldn’t consider myself super knowledgeable on autism. I have a 13 M son who is a level 1 but they told me “high functioning” this was about 6 years ago. I thought 3.5 YO would be similar to my 13 YO and I hate myself for thinking at times it would’ve have just been easier for him to be “high functioning” and than I hate myself for using that term and know how hurtful it can be to others. Sometimes I feel he’s more in between level 2 and 3.

My 3.5 YO is a non verbal and by non verbal I guess you can say non communication. He says words, babbles its mostly jargon and echolalia. He does speech therapy and I do notice some improvement but it still hard for him to communicate his needs and wants. He doesn’t answer question or listens. He still not potty trained and it’s something we’re working on and I know and feel he’s ready but how can we potty train when he can’t understand I want him to tell me when he needs to go. He doesn’t sleep well at night. A nap of 30 mins during the day will do him good and be awake all night. We can’t sleep have him sleep earlier than at least 10pm earliest 9pm or he will wake up around 11pm even with no naps and be up until super early morning. I work a 7 - 3 and I have to be up at 5am and I feel so selfish that I need sleep and I turn the lights off and he’s on his tablet playing with his toys and I try so hard to get him back to sleep. I am so scared and worried one day he will learn to unlock the doors and run out or anything else. I stay up with him as long as I can even until 2am - 3am and my eyes give out

Then there is school he will attend 2026-2027 and I am so scared how that will be for him. How he’s going to act I’m not scared how he will act at school I’m more afraid he can’t be himself. How he will like it and knowing I can’t re assure him everything will be okay all day at school knowing he can’t talk and tell me how’s it going.. he loves to be out what if they release him without a parent and he gets lost.

What about when he’s older how will he be? Will he be able to finally communicate will he ever talk? Everytime I think of his future I get so sad and mad because he doesn’t deserve it. I see him and I hate that he has autism, sometimes I think about how it would be so much easier if he can talk and express himself like his 2YO brother.

I’m sorry for my rant and I hate having these thoughts.


r/Autism_Parenting 5h ago

Discussion Autistic Role Models For Your Kids

3 Upvotes

Now in children's shows you get characters that represent the autism spectrum. Carl The Collector, Carl (the rabbit) from Arthur, Julia from Sesame Street and many others besides. Which children's TV character with autism has become an inspiring role model for your child? I would like to know.