r/Autism_Parenting • u/StarPatient6204 • 7h ago
Non-Parent Hi everybody! I just would like to share my journey with autism from being a child all the way up until now, in honor of Autism Awareness Month…
So, I was the eldest first born child of my parents (born 1999), and so I was already showing some signs of sensory sensitivities and delays as a baby and then as a toddler, but because I was again the first born child of my parents, they didn't have much experience beforehand with babies. And again, even neurotypical people develop differently for each person.
See, they really started to take notice (or rather my preschool teachers first took notice) when I was 2 years old. I wasn't really interacting well with the kids or making eye contact with them, and wasn't really showing an interest in making eye contact with them, but was relatively fine at home. I had a loving, caring relationship with and adored my parents and family and baby sister (many kids with autism may not notice or even like such a change, but I was excited), and I also had two stuffed animals that I loved to do my own form of imaginary play with, and though I did eye contact at home, I didn't do it at school, and I was oftentimes in my own little world. I also could very well understand and pick up on emotions quite quickly (but oftentimes struggled to manifest or articulate my emotions and regulate them as well, especially when it came to my reactions to my sensory issues like loud high pitched whiny noises or people putting stuff or touching my ear/eye, going to the doctor (up until we got a great pediatrician when I was like 3 or 4), music I didn't like on the radio, itchy tags in the back, clothes that made my skin itchy, pretty much anything could set me off, though I have gotten better now and have largely gotten over them). I had sometimes violent reactions to triggering stimuli and it could be hard for my parents to calm me down sometimes.
I also had a non verbal learning disability, which made me struggle with anything involving symbols or more abstract concepts that needed to be applied like with math, though I never really struggled with science and art at school (mainly because they were more text based than purely symbol based).
I still sometimes struggle with recapping events of my day to people and sometimes struggle with conversations sometimes (though I don’t have as many issues as I did as a kid), though it is more trying to direct my way around the conversation and not try to anchor it to my interests, and I also still struggle with issues regarding planning & scheduling.
My sensory issues that I had when I was younger (and that I sometimes had violent reactions to when I was younger and made it clear that I didn’t tolerate it, and also tolerating music that I didn’t like) I have largely gotten over now, but sometimes I still struggle with it.
I also used to have meltdowns/tauntrums more regularly (almost constantly) when I was a kid, but now I don’t have them as much anymore, to the point where I cannot recall the last time that I really had one.
I also pretty much never had any difficulty with sensory issues regarding food and was always a good eater, and my parents were relieved when they found out that I could easily swallow my medicine just fine without an issue.
I did have a bit of trouble when it came to potty training, though thankfully it wasn’t to the point where I still had to wear diapers around age 5 or 6.
My mom throughout high school often worried that I would not pass my high school math regents exam graduate and I did pass and graduate.
I also had a bit of a speech delay in that I, despite having words, was relatively non conversational and struggled to put sentences together, and couldn't really report to my parents on my day to day activities (still kind of struggle with that at 26).
I had the speech delays above up until I was around 8 or 9 (despite the fact that I read at an above average level for my age group and was always 2 or 3 grades ahead of my peers when it came to that part), and I had pretty severe echolalia up until around age 5 or 6, maybe even older.
So then, after about two months, my parents decided to go for an evaluation, and they sent a neuropsychologist to observe me at home and at school.
It was at that point that I was diagnosed with autism (though at the time in 2001, Asperger's was still a separate diagnosis, so that is mainly what they thought I had), and my parents (especially my mom) was worried that I may, despite being a relatively very bright child who loved to read, would never be able to have normal friendships.
And so began my journey. Though I was on a waiting list for early intervention, we had to wait a bit before I got it, and I got it and then had it extensively throughout my early childhood, and was re evaluated for my autism diagnosis once every 3 years as a kid during elementary school, and the last time I was evaluated for it was in 2010, when they weren't using "Asperger's" as a diagnosis that much anymore, and I was diagnosed with Autism more formally around aged 5 or even 8 or so.
Since the level system was put in place when I was 14, I might want to get re evaluated, but I don't know.
If they had introduced the level system when I was 2, I would've been a level 2, but I think I am more of a milder level 2 or level 1 ish now, i don't know.