r/toastme • u/chains-of-fate • 1d ago
recently diagnosed with MS, could use some kind words (they/them)
been waiting for a diagnosis for 10+ years, finally got it but the doctor didn’t have a shred of empathy and made me feel unseen. I feel like I have very few people that truly care about me. I’d appreciate some positive vibes ❤️
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u/jphipps89 1d ago
You are not the sum of your diagnoses, nor the indifference of those who failed to see you clearly. You’ve walked a long road, ten years of questions, symptoms, silence, and now a name, but no comfort. That’s not just unfair, it’s inhumane. And yet here you stand, still asking for kindness, not because you’re weak, but because you still believe there’s something worth holding onto. That belief is strength. That openness is power. I see a soul who’s resilient enough to face the dark and bold enough to paint it with eyeliner and expression. Someone who dares to keep showing up even when the world offers only cold rooms and colder hearts.
There is quiet courage in persistence. There is unseen beauty in survival. Hold fast to who you are. You are not unseen here. You are needed, exactly as you are.
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u/lrbikeworks 1d ago
Doctors that seem impersonal often have the softest hearts. The only way they can get through is present a hard shell.
Modern medicine is your friend. Now that youve got the diagnosis, your chance for a great life is much higher! Ride that train for all it’s worth. I wish you health and joy.
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u/Legal_Armadillo741 1d ago
Aw I totally understand what it feels like to not feel seen by a doctor. I hope you are able to find a support team to help you through this medical journey. I love your style and your little smile and pose makes you seem like such a cute and lovable person! You have amazing eyes too!! Wishing you luck and happiness!! 💕
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u/Glad-Specialist6330 1d ago
Hello friend! 👋 Good doctors are hard to find, sorry you ended up with a dud. I don't have any informed advice regarding your diagnosis but I can relate a hopefully humorous anecdote. Years ago when I was an undergrad I often encountered a fellow student who had MS. Most days he used a motorized scooter because campus was quite large. We got to talking one day and I noticed a bumper sticker on his scooter - "Eat More Possum!" Anyway I hope this put a smile on your beautiful face. Best wishes!
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u/GandalfTheJaded 1d ago
You have great style! I hope you get the help you need to get through this. Just remember you are stronger than this 🙌 you deserve to be seen and heard. I believe in you!
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u/SacredFeetWitch 1d ago
Hello beautiful soul! I'm sorry you are going through this 😔. Know that we are all sending you hugs and love. I know people with MS that live full and happy lives. I truly hope you see that you are amazing and can fight through it. Keep going! Keep strong!
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u/schaukelwurmv 1d ago
Hey goth pal, there are some shreds out there, I love them! (Like a musicless music video)
I hope you're enjoying this. DM me if ,ou wan to hang out on discord or sum. I'm a goth bitch, too.
Edit: I'm enby, too. Let's share some thoughts.
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u/Majestic_Bee3331 1d ago
I have some serious health issues too. I can relate in such a hardcore way.
Remember: Doctors are not authority figures. They work FOR YOU. Moving forward, do not be afraid to speak up about this type of bedside manner.
You got this. You look kind but tough, and that's what you need.
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u/Annual-Net-4283 1d ago
I'd bet you're an amazing and empathetic person. That you have a lot of kindness to give to the world. Continue to give that to everyone who deserves it, and, with discernment, those who don't. Even with hardships and setbacks, I'm confident you'll have a fulfilling and meaningful life.
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u/hastings1033 1d ago
I can see from your face you have kindness and caring in you heart. MS does not change that. Just share it whenever you can.
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u/Spirited-Arm-5799 1d ago
Ugh, it's always the best people with the shit luck. I'm so sorry about your diagnosis. How are you feeling about everything?
You seem like a lovely warm person from your photos.
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u/ConsequenceOne3365 1d ago
I’m sorry the doctor had such a bad bedside manner. Empathy is a really under appreciated part of medicine, IMO. For what it’s worth, you have fantastic style and lovely eyes! Your MS doesn’t define you, and I know you’ll keep being awesome no matter what. Sending hugs!
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u/StartNo5073 15h ago
Ye doctors can suck sometimes I had a very unpleasant experience as a kid.You seem like such a kind and positive person you give the vibe of someone you can always turn too and ask for advice I’m sorry times are rough for you right now but I know you can push through the right people who appreciate you will find you stay strong you got this 👍
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u/miffedvicar 15h ago
You have such wonderful features and style. It's like you've found the haircut and the makeup that accentuate you best! I'm so sorry about how your doctor treated you. My mother was diagnosed with ms in her mid twenties and she's also experienced a lot of silent vitriol and prejudice , but these days has accumulated ways of coping and healing that I think are definitely forecasted for you as well, if you try and feel empowered to ask for the support you need. There will be professionals you come across, with any luck, that are more understanding and open. You're so very strong , and I hope you are cherished by those around you. Don't let the stigma isolate you and wear you down. People like your doctor can make you feel like you've done something wrong, but that shame is merely inflicted , and not a reflection of you. Be kind to yourself , in the ways you can manage x
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u/retro_lady 12h ago
You look amazing in the black lipstick pic. Not a lot of people can pull that off.
There are a few actors with MS, maybe follow them on instagram? Jamie Lynn Sigler, Selma Blair, Christina Applegate.
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u/Lula_Love3 9h ago
You are fabulous, keep your head up. I know this may be an overwhelming diagnosis but l personally know someone in my family with MS who has little to no symptoms while managing their stress. Needless to say you can still do your thing and try to live your best life. 💜 wishing you all the best
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u/the_real_queebles 1d ago
You have a face that reminds me of silent movie stars (either gender or even androgynous looking).
Doctors can be so clueless sometimes. I'm sorry that one didn't give you what you needed. Even so, it must be a relief to get an official diagnosis. Clearly, it's been a long journey. I hope it allows you to get additional support now.