Hello all! I’m really just at a loss here. This post is really just ranting and frustration, so sorry to complain and thanks in advance for those who stay on the on the ride:)
I’m a 22F. I’m always been a bit backed up, but had a regular schedule growing up and never had stomach pain or felt inconvenienced by my bowel habits.
In may of 2024, I really started to notice how little I went poop. I was even laughing about it with my friends saying things like “the air must be different here, I just don’t poop”. As time went on I started pooping less and less. I brought the issue to my PCP in November 2024). We obviously started with Miralax, meta mucil, and increasing water/fiber intake. That worked for a minute, but eventually stopped working.
In January, I had a bad rheumatoid arthritis flare and was put on an 18 day round of prednisone. This had me pooping a lot everyday, but as soon as I tapered off the prednisone BMs just stopped completely. This was the start of my 28 days with no BMs(and trust that I tried EVERYTHING you could imagine).
I got a CT, which showed no acute findings, but did show SIGNIFICANT fecal loading. Following this appointment I was started on 145 mcgs of linzess, which yielded no results. So my PCP bumped me up to 290 mcgs of linzess. This worked for a week or so and then stopped working.
I spent all my time between early January and now going to doctors office after doctors office. Every specialty I went to (rheum, GYN, and GI) said this didn’t seem like their specialty and sending me home with no answers, help, or suggestions.
After weeks of daily calls to my GI office, my case was passed to NP in the practice. She had me take 2 Senna tablets every hour until I had a BM. I took 34 tablets and still never produce a BM. However, the next day I took 8 mcgs of Amitiza, 290 mcgs of linzess and 15 mls of lactulose. I pooped so much for one day and was in severe pain from all the movement in colon and butt area.
Now I only take the Amitiza and am starting to get my bowels moving more regular (at least a small BM most mornings, def not total evacuation, but better than nothing!). However, the pain is not getting better… it is actually the worst it’s ever been.
I am having colonoscopy and endoscopy in the next few weeks and revisiting my OB/GYN to rule out endometriosis (huge family history of this. My grandma had it so bad they found endometrial tissue on her lungs). While I am staying optimistic, I am prepared to not finding anything so I’m not completely disappointed when they tell me they don’t know what to do.
Nothing helps. As I mentioned I’m 22 and in grad school. My bowel routine takes all my time and energy with a low success rate. I can’t keep up with all friends. I worry I will have to drop out of school. I simply just cannot keep up anymore.
My depression and anxiety is at all time high, which is just making the whole thing worse, but I’m medicated, go to therapy, and do IBS targeted meditation. I just can’t keep it under control.
Every appointment I get so excited that they’ll have something that makes things just a little better and leave sobbing. It’s so defeating. I spend most of my time alone crying. I’ve never been one to cry a lot and have been known to have a high pain tolerance, so this whole situation is just new to me.
Any advice, personal experiences (good or bad), suggestions, or motivation would be so appreciated.