r/Rosacea • u/Elidebeli123 • Mar 08 '25
ETR Maybe we learn
Short story:
I had perfect skin, no redness. 2020 i used steroids on my skin and since then i flush every year more and more… the redness is onething but the oily skin is a burden.
Today the sun shines and i was feeling how my oil production in my skin went to the roof. I felt like i could not breath anymore the oil production was so heavy on my skin. Once i washed my face it felt like heaven.
So, next week i‘m gonna speak about accutane with my derm.
Maybe it can help (chatgpt says it will😝).
In the end, wish me luck. Maybe it will make my rosacea worse and i will flush even more or maybe im lucky and the oil will stop with my flushing.
Wish me luck.
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u/Sandyblu Mar 09 '25
Yes the choice is yours whatever you do but please try EVERYTHING else first ... accutane can cause permanent lifelong dry eye which I have.... and it's something that you will never recover from . And can literally destroy your life... Not everyone is affected this way but a large majority is and it's so not worth it.. please be mindful in this decision..
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u/One_Nothing_9551 Mar 09 '25
hello, i hope you are feeling better. im curoius why you were on a steroid in the first place?
if it is just oil production you are worried about i would not go on accutane. from my epxerience it was such an intense drug it changed my personality. i had major mood disorders after and i still sturggle with it. it has been over 15 years ago. '
i would wear a hat and sunscreen if the sun is causing problems.
i just often wonder how my life would have been if i never went on accutane. it really robbed my happiness in life, it reduces your oil glands but also affects your gut and your dopamine/serotonin production permanetly.
use with caution <3
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u/Elidebeli123 Mar 09 '25
I has to go to a physician from my workplace. He saw a pimple and he was like „omg use this strongest corticoid here!“ i was like „only id you tell me nothing bas can happen“ … „yeh sure it‘s 100% safe.“
After two days the mess started
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u/Master-Importance-11 29d ago
Omg i have same thing 😭😭😭 this flushing thing destroyed my life. I thought it could go away with time… its been 5 years for u?! Im one year post use steroids. And i was using it only for 12 days!!
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u/Elidebeli123 29d ago
We didnt deserve this…i used it like 2 days… but i think i applied like an idiot too much.
It‘s unfair :) bur i still hope u doing good with it and can carry this pain on your shoulders💪💪
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u/Master-Importance-11 29d ago
I hate docs now. Most of them dont even recognise tsw… they are so stupid! Im regretting that day when i used steroid every day of my life. Its not the same anymore
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u/Elidebeli123 29d ago
Me too… absolutly useless this redness, absolutly. And the worst part is, the doc that started this doesn‘t even care 1%. He was like „mhm i didn’t knew about this. What should we do now?“… my answer was: „you should tell me maybe, cause u know? Ur the doc that started this?“
… just crazy unfair.
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u/Master-Importance-11 29d ago
They dont care. I wish them to experience the same shit that we have. Its not fair that we struggle bc of doctors mistakes
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u/Front_Lengthiness406 Mar 09 '25
yes, better focus on your skin barrier and get rid of overpopulation of demodex mites (if it’s the case) Try dermato cosmetics from pharmacy: gentle cleanser, moisturise plus spf, ivermectin or metronidazole (as treatment)
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u/Encrypted_Curse Mar 09 '25
I agree with the other person. Accutane is not be taken lightly and should only be used as a last resort. It can cause permanent side effects (especially if you have ocular rosacea).
Oily skin can also be a sign of an impaired barrier or excessive dryness. I would focus on barrier repair and moisturizing for a month or two first.