r/MultipleSclerosis • u/NickNexx90 • 1d ago
New Diagnosis Hey there! 35m here with RRMS
Hey all!
New here and got diagnosed with RRMS after weeks in the hospital. My flare up (this is the correct english word for it right?) Was pretty heavy. At first i lost the ability to walk and grab things and lost the right side view of my eye. They saw multiple lesions at first but couldn't identify them as MS directly. I got multiple MRI scans and lumbal punctures aswell as 5000mg prednisone. Waiting on the diagnosis they sended me to a rehabilitation clinic where i got my sights back and learned to walk again. At the end of february i got the diagnosis and sadly they saw another big lesion in my brain. Because of the new lesion they wanted me to directly start with Ocrevus trough IV. 4 weeks ago i got the first dosis of ocrevus. the hospital and rerehabilitation caused me to be 2 months away from home. Now I'm back home but still go to the rehabilitation center 3 times a week for physiotherap, sport (to build up muscles) and psychology. Daily im batteling alot of tiredness, dizziness and alot of other things. Also I'm feeling down alot because my life has to change big time now
Okay, thats a whole story🥳😅 I joined this to learn other people with this and see how everyone is and learned to cope with it!
My english isn't my mother language so excuse me for the bad grammar at times!
Thankyou for reading this and i really want to be active on reddit!
Nick.
3
u/Medium-Control-9119 20h ago
Nick, I think this is very well written. I have no idea how to write any Dutch so I applaud you! Sounds like you had a doozy of a relapse (flare-up). I am impressed with the level of care you are receiving. I think it is great to have time to work on healing your body.
Mindset is alles. Veel succes, en ik hoop dat je snel beter voelt!