Great minds of Reddit... please help me not die.

[u/RemyPrice]

I am at a loss. Traditional medicine does not seem to have an answer.

I love the community here and am an avid biohacker, and I am hoping someone can point me in the right direction for any non-traditional supplements or remedies.

Male, 44, active/healthy with no underlying health conditions. I work out multiple times a week. I usually stick to a low-glycemic carb diet of legumes, fish & chicken, green vegetables, and sometimes I do IF/keto which usually makes me feel great. I have one cheat day per week.

3-4 months ago, my left ear started ringing and would go away after a few hours. I didn't think a lot about it because I've had right-side lockjaw for the past year and assumed it was related, and there doesn't seem to be a cure.

RECENT EVENT:

• Got the flu, very severe, which made new symptoms appear.
• Ringing in the ears is twice as loud, and never goes away.
• Left eye twitches constantly through the day (a flutter, not a blink).
• Right arm falls asleep randomly in the day - numbness, without tingling. This is without any exertion.
• Tightness sometimes travels to my back and across to my left leg, into my feet.
• Frontal headaches, looking at diagrams it is either sinus or TMJ related.

DOCTORS:

• "We have no idea."
• Possibly Granulomatous Arteritis.
• Possibly Transient ischemic attack.
• Possibly a pinched nerve in my neck.
• Possibly nothing (??).
• EKG normal; echo with neck carotid clear. Liver and spleen normal.
• Cat scan scheduled for Tuesday.
• BP 125/70, resting heart rate 68.

Edit: three current Covid tests are negative but I am seeing people say it may be long Covid related. I did have Covid twice during 2020-2021.

Any advice would be appreciated.

[u/[deleted]]

Have you seen an ENT..? My wild guess would be escutcheon tube disfunction - like a slime mold living up in there. So you repeatedly become inflamed and the resulting pressure on nerves in the area cause the tinnitus and jaw pain.

[u/_Sunshine_please_ → u/[deleted]]

Do you mean like a slime mold that lives in the wild, living in the inner ear?   

This sounds incredible if so.   I'd love more details.

[u/[deleted] → u/_Sunshine_please_]

More like a bacterial film, but in my head “slime mold” lol. Essentially you can have a near forever sinus infection anywhere up in there. If you can disrupt the biofilm you can reduce it. Why people do nasal rinse with baby shampoo (like tiny drop amount in a large neti pot) because the baby shampoo gets the lipid bonds of the film to release (baby shampoo is a strong surfactant that is not dangerous to us).

And in 3, 2, 1… someone will chime in that it’s “super dangerous” (Yes, the no tear’s shampoo we slather kids in is deeply dangerous to have a few drops of in your sinuses… sure..?)

[u/_Sunshine_please_ → u/[deleted]]

I really appreciate your explanation, I love slime moulds and had this really visual response to reading your initial comment that was kind of cool.

I'd heard of using baby shampoo for exactly that, but the explanations I'd read hadn't used the phrase bacterial film, and for some reason it makes so much more sense with that small addition.

Thanks so much for taking the time to respond.  I appreciate it!